Not a question just an update! Laparoscop... - Endometriosis UK

Endometriosis UK

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Not a question just an update! Laparoscopy done!

betty31 profile image
3 Replies

I can't find my previous posts but I'll quickly summarise. I went to GP in 2020 (pre lockdown) who said no, take a depo injection. Returned July 2021 to a sexual health nurse at my GP who referred for an Ultrasound. That had a cyst but we weren't that bothered. Then had a transvaginal scan which revealed my bicornuate uterus, had a gynae appointment at the hospital in January 2022 where the consultant, again, wasn't interested, wanted me on depo again and reluctantly put me on the list for a laparoscopy. Feb 28th 2023 came, laparoscopy performed, endo found (in places I'd had pain so that was validating) and excised. It's frustrating when you have to beg for these things, but I got there in the end. You really do have to become a squeaky wheel. I hated feeling as if I was bothering them. Such a conflicting feeling when you wake up and have relief that it's ends. I don't want endometriosis, but I'm relieved that I wasn't making it up. It was on both sides of my uterus on the ligaments.

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betty31
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Lindle profile image
Lindle

If you click your profile your posts will show on there. If you had endo in the uterosacral ligaments, as opposed to just on the overlying peritoneum, then this is rectovaginal endo which must only be treated in a specialist endo centre so if you weren't in a specialist centre just be aware in case you do need further treatment in the future.

betty31 profile image
betty31 in reply to Lindle

ooo that’s interesting thank you! I wasn’t in a specialist centre as such, the NHS sent me to a private hospital (so they covered it) and the surgeon was a specialist in endometriosis but it wasn’t a specialist centre if that makes sense! He has cut it instead of burned it away. I was under the impression this was a minor form of it?

TogetherWeAreStrong profile image
TogetherWeAreStrongModeratorEndometriosis UK

betty31 thank you for your update, I am glad you have finally been treated, it can be a real uphill struggle dealing with endo on so many levels, but this is a good news story!

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