I am new here and new to endometriosis. I had ulcerative colitis when I was nine and had my large intestine removed and a pouch created. no troubles for years then about 5 year ago trouble started. I was in and out of hospital with Pouchitis so they said, but they never really knew. Interestingly looking back, I had an ovarian cyst removed at 17 and another drained about 8 years ago. Went into hospital in jan this year with excruciating back pain, legs, trouble going to the toilet. after three MRIs they found five cysts on rt ovary, and managed to partially drain two. they are chocolate cysts so they tell me I have endo. Could it have been this aggravating my intestines since the original ops? I am now on zoladex, Targinact, Gabapentine and paracetamol. The side effects from the zoladex suck but if I dont have it the pain is worse, I know this as my consultant failed to tell anyone or put on discharge papers that he had given me this. The second implant was three weeks late so had a massive flare up. Has anyone else had trouble with their consultant. This is the same one who drained the cyst 8 years ago. He says operating is too hazardous due to the previous ops but I am at my wits end and just want it taken out, the lot!
Im 42 so having children is now not an option. The consultant and my gp tell me this is my life now and learn to deal with it. Not acceptable!!! Has anyone been to St Thomas and Guys Endo unit?