Does anyone get chest pains with endo

[Afrohair]

After having my misscarrige my symptoms have got worse I started having symptoms from my bowl and I felt my heart beat differently I told my doc she said I’m anxious lately the rhythm has calmed but if I try do anything physical (as far as Endo allows) I do try as I keep saying I don’t want endo to stop me being who I am though seems it’s taking everything from me ! I used to do dance so I was having a go today and my chest was hurting after a few minutes anyone else get this also one side of my stomach up to ribs hasent been feeling right it’s painful is this cystitis or something else ?fed up every time I notice something new it puts a downer on me when I’m just getting over the fact I bleed out my bowl I took myself of pill as it made my symptoms worse like I said so I’m not on anything till I get to see my g.p if I do decide to go on anything

[Hidden]

That sounds very serious! You might have Endometriosis outside of the pelvis. Try finding a good excision surgeon who can help you. Btw, Endo can cause heart problems too, and ie palpitations can be a sign of thyroid problems.

[Afrohair in reply to Hidden]

I’ve had my thyroid checked all clear!worried about my chest tho and the palpitations I saw a specialist last week and forgot to mention the palpitations I too took it as anxiety but the chest pains concern me I’ve never had it before and I’m not over weight or anything I’m very under weight

[Hidden in reply to Afrohair]

If youre underweight that still can be a sign of thyriod problems. My thyriod was checked with a standard bloodtest and that was fine but for a real look into it they have to check more. As you also have pain I really urge you to look better into it, Extra Pelvic Endo apparently is not rare, so Endo could be growing ON your heart (and bowels). (Don't want to freak you out, there are surgeons that can help if this would be the case!).

Please find yourself a good Endo excision specialist so that eventually you are able to do the things you love again. Oh, in the mean time, I love dancing too but found an alternative in Taichi-qigong, this might do you good too

[Afrohair in reply to Hidden]

I have found someone I’m just waiting for a referral as I can’t afford it privately it would cost me 6,600 I already have signs of it in my bowl but the specialist examined me and said he thinks it’s near my bowl not on it and he wouldn’t know for sure till they go in I could be waiting 9 month for a referral x

[Afrohair in reply to Hidden]

I had thyroid testing in July as I was pregnant they said it was routine to have it checked it came back normal x

[Hidden in reply to Afrohair]

Standard thyroid test is for T4, probably because that's the most common or dangerous(??). There's other levels they can test too like T3 i. e. You can Google this.

I did a test at my local healthshop where they test a different way.

[Afrohair in reply to Hidden]

What is tai chi -qigong

[Hidden in reply to Afrohair]

A private consult wouldnt cost that much, after you are just operated in the hospital. 9 mnths is a lot with what you're suffering with so it's worth looking into faster options.

[Afrohair in reply to Hidden]

No I mean the operation is that much I already met a private surgeon and that was the quote for the endo removal

[Hidden in reply to Afrohair]

Taichi and qigong come from China. It falls under martial arts but really its about doing slow movements to improve your health

[Afrohair in reply to Hidden]

Thankyou I will look into more testing as my mum has problems with thyroid and I asked for tests before they said I already have had it

[Singingintherain]

Hi, firstly just want to say I'm sorry for all the turmoil and pain you are going through 😮💞 my heart goes out to you. I've been through a lot myself with Endo and a few miscarriages and actually had an ectopic pregnancy. Really traumatic experience afterwards, but more than that was the constant battling with GPS to say I know my own body and that something wasn't right, and it turned out that they had left part of the featus still in my womb which ended up causing really bad poisened blood infection. 15 years later still getting various problems from Endo but have complications as I have really bad lesions that such to various parts as well which make pain even worse. I think it's admirable you are trying to hold on to things you enjoy like dancing even if you are finding it harder to do, even if it's a case of having to swop the kind of dancing you done for a less intense one, hold onto things that g give you enjoyment and make you happy, I feel this illness is so underrated in the media and forgotten about compared to coverage others get. I would get second opinion on the pain in ribs and chest and maybe ask to get referred to gastro specialist incase that you have problem with ulcer or hernia that is possibly putting pressure on the area as that's happened to me before. Hope some of this helps and keep strong!!!

[Afrohair in reply to Singingintherain]

Thankyou for your heart felt reply so sorry you had such a bad experience with your misscarrige.i do feel endo has took a lot from me as I’ve always been so outgoing and now I feel very lost as I can’t do things I used to like dancing and even some social activities. I have got other hobbies where I am less physical like sewing and crafts but I enjoy dance more this illness is very under rated I’ve had symptoms since last April and I think mine grows fast as my symptoms get worse every month.its so hard trying to let people know and looks like my current g.p has left practice just as I was getting her to understand this illness I have to try and tell someone else .it’s frustrating x

[Singingintherain in reply to Afrohair]

Don't give up!! Keep fighting and don't underestimate your own strength, you will amaze yourself with your inner power. I totally empathize, it's all about coping strategies and making swops, to things you wouldn't previously consider and sometimes putting yourself outside your comfort zone and it will be worth it!!!💞🕺

[Afrohair in reply to Singingintherain]

Thankyou sometimes you just have to put things into a different light when it first started I was in denial and didn’t no anything about endo upon research I kept dismissing it till I came across a website called netmums with a section on it I was shocked when I saw it was an actual thing I’ve been struggling with .its been hard so far but only thing keeping me going now is to take each day as it comes and enjoy the fact I’m still living and there’s people worse of sounds awful but I have to think like that or I would sit feeling sorry for myself sometimes I feel sad but I get back to what I’m doing and try to refocus x