what it’s likely to be seen on an MRI

[0Jasmine]

Hi

I have been referred for an MRI and I’m wondering what/if anything is likely to be picked up on an MRI - endo/adhesions/scar tissue etc? What are your experiences with them? Thank you.

[Lindle]

This is really useful

radiologyassistant.nl/abdom...

[0Jasmine in reply to Lindle]

This is great! Thank you x

[Chocoholic168 in reply to Lindle]

i have just reviewed this link so very useful! I believe i can now put a rough word to mine, adbdominal endo with endo implants. And scar tissue/ lesions as mine seems to be around the abdominal area. Thanks for this info as knowledge is power so to spk x

[StrictlyEndo]

Hello, I just wanted to let you know my recent experience with an MRI. Obviously everyone's experience is different but with this disease, you have to advocate for yourself so I would advise requesting a copy of your MRI report once completed before agreeing to your next steps in your journey.

I have had an MRI for endo a few weeks ago and it has picked up a lot of areas where the endo has developed. It has also diagnosed Adenoymosis and hydronephrosis. I had to chase up my results as it had been a month and I hadn't heard anything from my consultant at the hospital.

I still wasn't getting anywhere so I contacted my GP to see if they had results which they did, and they also had a letter from the hospital that had been sent to me. The MRI report was 2 sides of A4 paper detailing the extent of my endo. The letter that I got from the hospital was 3 lines long and said it showed a "degree of endo" and that they want to do a diagnostic lap.

I am now seeking referral to a specialist centre as they wanted me to blindly agree to a diagnostic lap when I have in black and white exactly where and how extensive the endo is, putting treatment back even further. Had I not requested the MRI report from my GP, I don't believe the hospital would have discussed it with me.

Just something to bear in mind, especially if you are under general gynaecology and not a specialist centre. Good luck

[Pinkybow in reply to StrictlyEndo]

sorry to jump on this thread but how do you ask for your MRI report? Did you just ask your doctors direct? Mine went to my bsge consultant.

[StrictlyEndo in reply to Pinkybow]

Yes I just asked my GP - I was told at the MRI that results should be back within a week. I chased the hospital after 2 weeks who told me that the results were back and had been given to the consultant to review, so I knew they were back! I had a doctors appointment this week (another 2 weeks, so 4 weeks total after the MRI), and whilst there I just asked for the results and she printed them out for me.

I am currently under general gynaecology under my local NHS so not sure if it will be different with you being under a BSGE centre and they might actually run through results with you, but either way your GP should receive copies of all test results carried out.

I would just say if you do get a copy, there is a lot of doctor terminology so be prepared to do your research! Took me around 4 hours to work through mine!

[Pinkybow]

I don't know if this is any help but mine picked up endo on my bowls and an adhesion on my back and pelvic wall. They may have said more but it was a real blur with all the info that was fed to me at that appointment.

[Roobs33]

I had mine 6 months after surgery as my consultant wanted to see the extent of my bowel endo. It showed where abouts it was fused to my uterus and in how many places. It also picked up on a very enlarged Fallopian tube that was blocked. I think they are able to see deep endo if they know what they are looking for. Good luck and I hope you’re not waiting too long for results x

[Avourneen]

It's essential to have one. any surgeon who knows what they are doing will recommend you have one before they even consider operating. It is really effective ayt showing up exactly where the endo is and can show adenomysiois easily which can be missed on a lap.

But reading the messages below and from experience it makes a really big difference if the sonographer is good. You need a specialist sonographer who works in gynae and has experience of diagnosing endo.

I actually had 2 MRIs and a specialist ultrasound scan and the quality of results was very different depending on the sonographer. The best one for me was the ultrasound scan because it was done by a knowledgeable specialist who actually sat with me for 30 minutes after the scan to explain everything and answer my questions, he sent a report to my doctor , myself and my gynae the next day.This was private and cost about 400 pounds but it was the best scan experince i have had by far and was worth it.

[Starry1977]

Hi, mine picked up adenomoysis, extensive scarring and more nodules.