sorry for the TMI but why when I'm on my period does it hurt so much more in my abdomen and right side in particular when peeing or pooing?
leading up to the period cramping seriously and even turning over in bed my right side hurts more. I'm 44 and periods only restarted in Feb this year after a disaster on decapeptyl injections since August last year.
if I'm not 'gushing' everytime I move on my period its a 'extremely horrendous pain and weepy and exhausted period '.
can anyone advise?
I also get this lower right sided pain when passing urine on period and also get right side pain in between the month also. I'm waiting a lap to figure out what this is. Do you get lower right pain in the month also? Have you been diagnosed?
I've been diagnosed stage 4 endometriosis April 2018 by laparscopy and I get it from time to time during the month but not as severe or as constant as when I'm on my period. Thanks for letting me know I'm not alone or crazy
Hi there, does it happen after certain foods as well? x
Hey Nope no matter what I eat or don't eat it happy x
Hi, could be your blood pressure. Have you had a check up recently?
No not since my last checkup with gp and it was fine.
Endometriosis can cause lesions to develop in and around your womb; if they are located on one side, you may only experience period pain on this side. For example my endometriosis is everywhere including around my bowels and up to my ribs. I don’t have periods since I am on Decapeptyl, but the pain is present for example after I eat, especially certain foods like high FODmap x
Wow ok that's interesting. I've been to 2 gynaecologist and both have pushed the coil, pill and decapeptyl injections at me. I've refused to accept this and if I'd known what decapeptyl injections would put me through I'd never have agreed to it. My gp has told me no processed foods and sugar but the Mediterranean diet will help me which I am doing. Pain is not so bad except when on period. Both gynaecologist just keep doing ultrasound and telling me oh your womb looks fine and I just despair. Even my GP is like 'why can't they do a laparscopy you obviously have endometriosis outside the womb in other areas!' My skin gets really bad acne on period too and it's ok during the month unless I flare
I’ve been suffering from stage 4 endometriosis for 20 years and so far for me the combination of Mirena+Decapeptyl helps. The only side effect I have is bone pains but that is because of my osteopenia and disc prolapse in my spine. I am a clinical nutritionist by the way and never take nutrition advice from GP or gyno or anyone who isn’t nutritionist. They have no clue. I hate the word processed. You cook your food, so that is also processed food. Nothing wrong with sugar; you can have some in moderation and obviously there are different types of sugars. Also AVOID ANY TYPES OF SWEETENER THAT ENDS IN “OL”. Like malitol,steviol etc. those are the worst high FODmap foods. Also keep in mind that we are all different individually so something that makes your symptoms worst might tolerable for someone else. For example onions are high FODmap, but I can cope with a small amount. Same with dairy products. Except cow milk. Etc
Hi, do you mind me asking how long does it take for periods to stop following 1st decapeptyl injection? I had it mid July while had been bleeding for 18 days The bleeding stopped immediately. I was delighted then 15 days ago I got my period again. really annoyed to be bleeding again. teases up & I think it's finished and then go to loo & Still bleeding. I can't find any good Info on internet about decapeptyl for endo & what to expect. I don't have a good experience of the hospital & reluctant to ring them because I'm never staying there again. I don't have any information Sheet & I don't even know how much they gave me. It was very rushed. I'm not getting much symptoms now, other than my ability to tolerate bullshit from anyone has left the building & I'm a bit cheeky like I was as a teenager but I'm liking that bit of fire. Been a doormat for a long time without realising it. Did this happen for you? XX
Like you I had a bit of bleeding for a while Like spotting bleeding more than gushing bleeding sorry for the TMI. After about 6weeks After 1st injection periods stopped completely and omg the side effects and symptoms kicked in. My sister got married and I was like a hot flush machine and exhausted and extremely emotional and had to hide all of this for her wedding
Like you my tolerance for bullshit went out the window and still hasn't come back and yes I was always someone who refused to tolerate it.
The 2nd month on them I had nauseous stomach constantly and worse migraines and fatigue and when it should have been period time I was just unbearable, my moods were extreme and my weight gain/ bloating was ridiculous.
My gp refused to give me the 3rd injection and the withdrawal was horrible.
Like you I was given no explanation or advice about these injections and when I contacted the consultant gynaecologist he was like " are you following my instructions how to take the injections it'll settle down!"
At that point I was sorry I'd listened to him and refused to go back to him.
I hope you are ok and 6months after stopping the injection my periods came back.
you see there was a mess up in 2016, 1 had spent 17 years trying to be diagnosed and leventually through my own research suspected I had an endometrioma in my abdominal wall. I took my research to A&e the next time I was crippled with pain & the Gynaecologyst on call who I was assigned to said I was ridiculous, I didn't have an endometrioma, there was nothing wrong with me and if there was it most certainly wasn't an emergency & he tried to discharge me. I refused to be dismissed and refused to leave So he washed his hands of me. Then the consultant on call in mu ward came to see me but he wasnt Gynae, I told him what happened & I showed him my research including to fact that & Mri was needed to confirm it. He ordered MRI, CT & Ultrasound Guided Biopsy & then offerred me a job when my theory was confirmed. Then it was a big job to remove it. It was the size of my fist. He told the original Gynae what he had found & invited him to the Surgery. The Gynae declined and so no gynae was involved in the procedure & nobody checked for endo elsewhere in me & they reenforced me with mesh and closed me up. The op did not work and spent 2 years trying to get the wound to close, to no avail. I was sent to a plastic surgeon who decided the mesh needed to come out. It was removed, to be reconstructed in 12 weeks but they put me on the long finger for 2.5 more years with no abdominal wall having to wear a support Brace to hold in my abdomen until I kicked off in frustration. I had 22 hours of reconstructive surgery with pig flesh which I was warned could not be cut open again. fast forward to Jan this year, extreme pain & bleeding Since & last month diagnosed riddled with endometriosis - which explains the loss of a baby by ectopic pregnance 24 years ago. So they want to operate to do full hyperectomy, possible endo in spino & probable in Rectum & Bladder & Urethra. But I can't get cut again of it can't be reconstructed again. They put me under the same Gynae as last time even though I specifically asked for anyone but him. His registrar told me there was nothing wrong with me but old age, at 48. Shocking. he tried to discharge me & I refused to go. I was in my doorway in pain wher a kind Gynae found me. He has a lot of clout in the hospital. I told him my story, no ordered my notes & his team to his office & an hour later he sent for me saying he believed I was riddled with endo basically & he wanted to opperate & take everything out & It would have to mean cutting me open. When I explained I can't be cut again he said it was neglegent that nobody investigated inside me for further endo than the endometrioma before sealing me up for life.
I wonder would to testify to that...
So then he suggested the decapeptyl and I agreed & was injected the next morning. It has been difficult to get on with my life since. I don't know what to do to be honest. Thinking of seeking an opinion outside the country. Sorry for the long story. Maybe it'll help someone else XX
I'm so sorry to hear what you had to go through and the amount of gaslight. I wish I'd been as knowledgeable as you were, in Ireland its far more backwards and you're only referred to a gynaecologist for pregnancy or if your smears are irregular and so even though my periods stopped suddenly at 21 and restarted a few months later, no investigation or scans done just the gp saying go on the pill and was on it for nearly 20yrs until pain was so bad and periods so heavy I had to give up as no pill was strong enough to help me. Then eventually I changed gp and he was able to help me get diagnosed. But even he cannot understand why the gynaecologist in this country are so reluctant to do any surgery or investigation other than ultrasound of the womb. If this was a mens problem it'd have been solved eons ago. I'm here if you need to talk cry vent
I also get right-sided pain, had been unable to sleep on that side but it's fine currently. I've had kidney scans, a lap, a hysteroscopy and my GPs really don't think there is anything there, however it could be your ovaries kicking up during ovulation and other periods of your menstrual cycle, especially if you had any scarring there.
I have found that actually, stress and an overly tight pelvic floor have been behind most of my woes, and a pelvic floor specialist said it may be due to difficulties managing internal pressures.
I have noticed this right-sided pain has gone now unless it's a slight flare up for an hour just before my period. I am doing loads of swimming and pelvic floor relaxation exercises and breathing while expanding and contracting my pelvic floor and I actually think this has improved my quality of life by a stupid amount, especially by trying not to stress out and never staying up late or working late and really focusing on a relaxing evening. I also take 10 mg amitriptyline well before bedtime and that noticeably works on this kind of pain.
Oh wow that's interesting, all my ultrasounds keep showing 'everything is fine nothing to worry about!' But my right abdomen is not fun on my period, turning over in my sleep or even going to the toilet. I used to do yoga before covid but between my endometriosis going into overdrive and the fatigue I just had no energy. Thank you for your reply its definitely food for thought.
Yeah, mine didn't used to like me sleeping on that side for a couple of months, but it always seemed to flare up on my period or ovulation and then it would sulk for a bit then it was time for my period/ovulation again so it never seemed to go away. But doing all the lifestyle stuff like avoiding stress, splitting hours of sitting at my desk with getting up and doing different stuff, religiously winding down in the evenings (I'm somebody who will work into the night), taking 10mg amitriptyline a few hours before bed and doing exercise every day, even when I have endo flare-ups, really does seem to keep it away. It used to be agony lying on the floor doing cobra because of it but persistence seems to have worked. I honestly wonder how much of a lot of people's symptoms are because of actual inflammation, misplaced internal pressure (which is a thing apparently) and pelvic floor stress from all the endo. I also see a physio every week, and one thing she has taught me is that you need to stretch scar tissue and I can't help but think that this probably applies to potentially the internal areas where you may have had endo removed and that potentially doing exercise and things where you use all your muscles like pilates and swimming might be stretching things out round there or something. I think it's worth pursuing this line of thought because a lot of people are often getting scans and laps and stuff that doesn't show anything yet they still have these annoying symptoms, and I can genuinely say that, hand on heart, unless I wear stupidly tight clothing for days and days or I get a bit too adventurous in bed at a stupid angle, or I do a 10K out of the blue or lift weights that are way too heavy, I don't usually get any pain now at all and I used to have cramps and bleeding and all sorts every day. I'm not saying that it isn't worth trying to get every single kind of medical exam and process you can get, but if you've got adenomyosis like me for example, you're sort of stuck with finding good solutions so I'm posting them here to help others.
Oh wow that's interesting. My GP is of that same mindset in that he's emphasised I need to relax, walk some get some sun good sleep and try to avoid stress so he's declared me unfit for work. I have pain meds but I try to only take those when I really need to. Thank you for your reply you've really given me a good few ideas
You've massively helped me so thank you! I just had a lap and the gyne thinks my symptoms should have improved to the point he wants me off my morphine, but I'm still having pain. Just not as severe, but definitely still there. I'm going to up my yoga and do it every single day now, i used to avoid it on bad days because i thought it would make it worse lol. Also will look into some swimming 
Oh I'm so glad, I had my lap and was so clueless my gynaecologist put me on them straight afterwards and it was horrible, I stupidly agreed to try a longer stint on them a second time last year and it was a lot worse than ever before. I now know I don't respond well to synthetic stuff like decapeptyl injections, mini pill etc so I'm now on ponstan monthly for the pain and like you trying yoga to help ease me. I've learned the hard way stick to your gut we know what is right for ourselves and our bodies and have no problem with telling it to gynaecologist these days.
Hi Escapologygirl
Thanks for your post. It sounds like you've had a really tough time with endo over the years. Sorry to hear about this horrendous pain you're experiencing on your periods at the moment. It sounds very much like the sort of endo symptoms that I can relate to (most of the endo was found on my right side - right ovary, right pelvic side wall, right ureter etc.). I wonder whether it could be a similar situation for you. It's really common to experience bowel and bladder symptoms with endo too, as you're probably aware. Over time, adhesions can form too. There are so many possibilities.
Are you able to book an appointment with a gynae who specialises in endo? It's best to get some professional advice and treatment.
Hope things improve for you soon 💛
Claudia
Hi Claudia
Thank you for your reply, unfortunately there are only 4 endometriosis specialists gynaecologist in Ireland and you have to be referred to them by your regular gynaecologist when they've eventually bled you dry financially and worn you out with decapeptyl injections, coil treatments etc. I've been to 2 gynaecologist and hopefully next appointment with him he'll refer me to the endometriosis specialists.
I have suspected what you've said about bowel and hopefully I'll be able to get it sorted.
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