My doctor is trying to take me off cocodamol and giving me paracetamol as it’s not long term. I keep informing them that paracetamol is not going to help and I would just be in so muhc pain.
What other medications do you guys use to manage flare ups. I’m currently having one can’t get out of bed I’m vomiting dizzy and I’m agony.
I also take herbal remedies as well as TENS machine and warm baths but don’t really seem to work when I’m having a really bad day.
I use Amitriptyline prescription by GP
I was on a similar antidepressant called duloxetine but it gave me constant migraines
Apparently if you have it in small doses it can help with pain.
I can’t take it made me ill any other options
Hi Littlebug77
Sorry to hear you're dealing with so much pain right now 😔 I think the ideal pain management treatment is very individual, and it can be worth exploring what suits you best.
For me, ibuprofen is what I use to bring the pain down as it reduces the inflammation in my body caused by endo. It doesn't work instantly though; during a flare up I might need to have taken ibuprofen with meals for a couple of days before the pain begins to ease and it doesn't necessarily disappear completely.
If you can, speak to your GP about the fact that paracetamol isn't strong enough for your pain. If they aren't understanding, then you could book an appointment with another practitioner, or visit your local pharmacy or Boots pharmacy and discuss with a pharmacist there. Getting advice from the professionals is often the best, if they are willing to listen 😊
Hope you find something that helps.
Take care,
Claudia
Thank you very much Claudia I really appreciate the advice I will try that
Hi Mia, I take- naproxen 500mg twice daily. Zapain 30/500 two tables 4 times daily. Gabapentin 600mg three times daily. And liquid morphine for breakthrough pain. When my gp attempts to take me off my medication I tell him that it’s okay for him to do that however I guarantee that I will end up in a&e with excruciating pain and that makes him change his mind. What you must stress is that is that endometriosis is a secondary pain and not primary! Also it helps if you can be seen by a specialist in a bsge centre near to where you live. Hope you are not in too much pain. Good luck xx
Thank you for your reply I thought I was the only person who never took ibuprofen and paracetamol and was on something stronger. I literally cannot work it’s impacting my uni life I feel like I’m gonna end up back in hospital in a minute. They are only giving me 4 tablets a day. So I’m rationing them because worst case scenario is I end up with absolutely nothing . I will say it’s secondary pain 100% and also what is bgse I will research it now thank you sm
Bsge centres are endometriosis and gynaecology specialists and so will treat you as a human and not regard you as trash, they are more understanding than gps and standard gynaecologist as they have an interest in your health and well-being. It was the best move I ever made. Ask your gp for a referral they cannot refuse. Also I would definitely make an appointment with your gp about medication because what you’re taking wouldn’t touch the sides with me that is ridiculous! And to know how much I suffer even still with my medication I do feel so bad for you. I’d ask for emergency appointment. Or go to a&e each time you get in pain. Or call 111 during gp opening hours and tell them that your gp is refusing to help you. I’ve unfortunately had to give up work as my endometriosis is stage 4 I also have adenomyosis and frozen pelvis 😯 xx
Thank you I’m gonna try phone on Friday I had an appointment yesterday she told me to take paracetamol and ibuprofen I told her it’s not going to work and she said I need to try :(. I haven’t been able to work all this week and I needed to due to money issues etc. thank you so much for your advice it means so much to me I feel like I’m not crazy. They make me feel like a drug addict you know.
Oh bless your heart, I know that feeling all too well. We just get dismissed as if it’s all in our head! I’m currently in the middle of suing my nhs as the general gynaecologist had apparently removed my left ovary in 2008 and hadn’t done it as I’ve later learned from the specialist! Also I had surgery last year after scans had shown the extent of the damage due to the endometriosis and the general gynaecologist opened me up and closed me back saying that she couldn’t help me as it was beyond her knowledge hence why I ended up losing my job and so I then have had to wait until feb this year for my op with specialist. It’s all a big mess I’m still in agony daily and now on top of that got depression and anxiety so my advice to you is advocate for yourself and don’t back down. I wish you all the best and hopefully you will be heard xx
I use naproxen with omeprazole for half the month. Co-codamol on top sometimes if needed. Amitriptyline just at night if needed.
Hello - I’ve just got a prescription of Naloxegol, to go alongside codeine use (it’s for the treatment of opioid-induced constipation), which I use for cyclical period pain. I don’t think all GP’s know all the different options.
TENS has really helped me too, and with a private specialist pelvic physio, I’ve been doing post tibial nerve electro Accupuncture, and then TENS at home, which helps dampen pain signals in the pelvis.
There are private pain clinics as well as NHS ones.
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