Anyone elses bones absolutely ache??

[ArtyPal]

One of my recurring pains at the moment has been aching bones. It feels like the centre of all my bones (mostly arms, fingers and legs) has this deep rooted numbing pain and I'm at such a loss with it.

Someone with fibromyalgia has noticed a few things about how I am and thinks I have fibro as well but I wanted to see if this is a symptom any of you lovely lot share? I'm still awaiting my diagnostic laparoscopy (going to call at the end of the month to be put on the cancellation list after my holiday and make sure they're also checking for adenomyosis) but thought I'd ask here in the meantime.

And if there's anything that can help these pains? I'm on amitriptyline and iron tablets already and am trying my very best to save my painkillers for when I really need them so I can survive the flare ups 🥲

[CoffeeandCrisps]

Hi ArtyPal I have the same issue and sometime I feel the pain is all over my body. I have had a telephone consultation with a GP who diagnosed me with possible fibromyalgia and prescribed amitriptyline. Although this helps me to sleep, it does not help with the pain in the slightest. I do not feel like my GP has done enough in order to conclude that I have fibromyalgia. Now that I have had my endo diagnosis, I am going to look in to the fibromyalgia as it is so debilitating. I hope you find some answers soon! 💜💛

[ArtyPal in reply to CoffeeandCrisps]

Hey! It was my endo gynae that prescribed me amitriptyline and I totally feel that, I really don't think it's doing anything for me either! I'm glad that you've got the endo diagnosis and can look into fibromyalgia more, I hope you find answers too! It's so tough having to learn about things and advocate for ourselves when it comes to GPs, that's why I love this group so much cause everyone's in the same boat ❤️

[bunnyp34ch]

I have aching hips mostly, corresponds with the side I get my pelvic pain most intensely. Occasional shoulder and arm aches on that side too. I'm only in my 20s but I feel so old and creaky. Today for example I had flu like aches which had me in bed at 4pm and I woke up 4 hours later with my usual pelvic pains. Am also waiting to be diagnosed with something. I can't tolerate painkillers so unfortunately am limited to just lots of heat and ibuprofen gel. Hope your lap goes well

[ArtyPal in reply to bunnyp34ch]

I'm in my 20s too so totally relate to feeling old and creaky! I haven't thought about trying ibuprofen gel, I might give that a go and see if it helps the areas a bit better! I hope your aches are a big more manageable today ❤️

[BattyForBats]

Me too, when I get up from bed in the morning or after sitting down it feels like my knees are locked and I end up hobbling like a little old lady until they 'free' up a bit so i can walk better. I have noticed lately that they ache more often than not. Being 41 and working in a job where I'm on my feet all day I put it down to wearing out before my time but looks like it might not be reading you guys

[ArtyPal in reply to BattyForBats]

I totally sympathise with that, I've had a few more hobbly mornings lately and it's a hard one! I'm self employed so I'm able to work around how my body feels so couldn't imagine how hard it must feel being on your feet so much! I hope you're a little less achey today, thanks so much for sharing!

[Avourneen]

Endo is really linked to reumatoid arthritis it might be worth lokking into blood tests for that.

[ArtyPal in reply to Avourneen]

Oh that's good to know! I haven't had blood tests for a few years now and these pains are a lot more recent (maybe the past year) so I'll definitely see about getting some done soon, thank you 🥰

[Melon365]

Hi ArtPal

I get this as well particularly shoulders and knees. It might be worth having a blood test to check your thyroid cos it could be that and it is linked with endo. But I read that bone and joints aches are connect to high levels of eostrogen, have you noticed that its worse when your other symptoms are worse? For me I know when the pelvic pain is going to be bad cos everything will ache first.

I use CBD oil to manage my pain but I find actually moving around so I don't stiffen up helps a little.

[ArtyPal in reply to Melon365]

Oh you may be onto something there!! My baseline pains are typically my pelvis, legs and back but the bone aches did come on when I felt worse than usual! I'll maybe keep note of these in my pain diary (only started it in April but it's been good seeing what happens and when)

My pharmacy told me that cbd would interest with my other meds but I have been looking at the oils that you put onto the areas rather than ingesting so will definitely look into it more. Defo feel a blood test in my near future just to make sure there's nothing else going on!

Thanks so much for your help!

[BloomingMarvellous]

I was told I had ME & Fibro for the longest time but have always had doubts as both are little understood umbrella responses to the body in distress. They are very real symptoms but not understood. Neither is endo. However, the things that worked for my fibromyalgia also work for my endo. So ponder on that one ! The gene associated with endo ( as of research late last year is also a gene that governs thyroid, salivary glands , gastric pathway of small and large intestine esp with IBS / colorectal cancers , anxiety, bi-polar , heart function that requires beta blockers when it goes skew whiff and apparently glaucoma. All are regarded as responsive to a good Mediterranean type diet , high fish preferably Omega 3 and responsive to something called PEA . They say the Omega 3 helps with the leaky tissue and inflammation throughout the body and improves the hormone regulation. What I found was that quickly intransigent muscular pain and achy bones stopped and nerve pain went .I had been eating mega pain killers so it was a bit of a wow. I used to put it down solely to poor thyroid hormone uptake ( am hypothyroid which can be part of the fibro, endo dance for many too ) but clearly it made no difference after a certain point. Take out ? Get the thyroid, calcium, magnesium Vit D levels checked and consider the other to try . As a good friend is quick to remind me you are entitled to have more than one disease at a time you know 🤣. It’s too easy to dismiss symptoms into one basket alone and struggle unnecessarily. Not everyone has the same symptoms for the same reason.