Whats wrong with me?

[JujuB77]

I have hip pain on my left side and abdominal pain on my left side. Its terrible and my joints are so sore. l just had a CT scan which didnt show up anything although I have heard that endometriosis doesnt show up in a CT scan. My GP said no further action although I was referred to gynae again in November my 2nd referral since learning I had a bulky uterus and getting a mirena coil so waiting on seeing them. Im actually at the end of my tether! GP treating me like its 1. All in my mind and 2. Wanting to prescribe Amytriptaline!!! I said paracetamol and ibruprofen and hot water bottle are my daily routine and I dont want more pills to mask the pain. After 2 years I just want to know whats wrong with me. 😢

[CArolGrace]

You have to push ! It is here that u need to put in the most work ! As u need to have a understanding gp to help refer you. Keep booking gp appointments and start making a record of your symptoms in detail . You have to be an advocate for your own well being and as I have discovered over the last two plus years , you have to keep at it , it’s tiring … but not more tiring than what is happening with your health and what you are dealing with every day. Record your symptoms and show them to your gp each time and tell them you need to be referred ! Ct scan does not rule out endo and other tests need to be completed in order to build up a case of what’s happening. Ask for an mri and trans vaginal ultrasound too !! Keep it up and stay strong 💪

[Roobs33]

Heya, I’m so sorry that you’re in pain and not getting anywhere with GP. It’s so awful my GP luckily referred me as they suspected fibroids which turned out to be endo as they found a huge cyst on my left side which was causing pain. This was all back in 2020 and I went on to have two surgeries but had to go private. I would try and go back if I were you, or if you are in agony then go to A&E and hopefully they can give you an ultrasound scan. Things don’t always show up and you will probably need an MRI & Laparoscopy either way to fully determine. You could get some info from Endometriosis.uk to take to your Dr. I was told I have a bulky uterus which is also in line with possible Adenomyosis. Wishing you the best of luck abs sorry it’s so hard to get anywhere with it xxx

[WanderingFox]

Oh my gosh I have the same thing! Pain in my lower left side around the hip (and rear in my case), dependent on strong painkillers and hot water bottles. Can’t sit or lie properly without pain but even when I’m standing it’s there. I just put up a post with more detail of my symptoms.I’ve had a ct scan, vaginal ultrasound, and a mri- all clear. I’ve been told the only way to determine if I’ve endo is to get a laparoscopy.

It’s so frustrating because it feels like no one is taking me seriously.

[Tillyfloss]

Hi. As already said getting taken seriously with this type of pain is hard work and I found the more information and knowledge I went with the gp just referred as they were clearly out of there depth. Keeping detail records of the pain is very good advice and the endo specilast I sore found it helpful to pick up the pattern of pain. For the hip pain, I had it and it felt like something was slowly being screwed into the bone and I couldn’t get relief from it, I had ct, mri and lots of ultrasound scans and other than the cyst they knew about it was all normal but when they operated I actually had a full frozen pelvis, not that common and very little inflammation about it but it’s very painful and for me it had got so bad it was constant pain all month not just cycle related. I do have endo to but the hip pain was the frozen pelvis. To help whilst you get help have you tried the endo diet? Might help a little. I would also ask the gp to refer you to the pain clinic they really helped me whilst I waited for surgery. Xx

[JujuB77]

Thanks everyone for all your advice 🤗