I’m currently waiting on a diagnostic laparoscopy but as you can imagine the waiting list is long. I’m on the progesterone only pill but I don’t feel like it helps as my gynaecologist keeps suggesting it does.
I have constant pain in my left side, pelvis and hip on bad days it goes into my left leg. I have zero sex drive, it’s painful to even have sex. (My poor partner) the sharp breathtaking pains come quite often. I have bloating and cramps all across my stomach. The other day my back went and I couldn’t bend down.
I had an ultrasound last week which then needed to be an internal one as they couldn’t see my right ovary and when it was over I needed help getting off the bed as my pain was bad.
I’ve been prescribed naproxen but they don’t touch the pain and to be honest I really don’t want to constantly be taking pain meds.
Recently I’ve notice my mood just be in a permanent low or irritated state. I don’t really want to be around people, I get stressed out easily and I just feel like I’m not a nice person to be around. The doctor I spoke to asked if the pain is causing me to feel depressed and low and honestly I think it is and I just don’t know what to do to help get my mind back to the happy go lucky person.
Is anyone else feeling like this with the pain? Or is it the pill mixed in too?
Hi Elissa,Welcome in my club too.I am sorry for your pain.U r not alone remember.
I am so stressed too with my pain,very similar symptoms like yours,constantly in pain,i just cant remember how it is without pain anymore?...Was sent twice for US abdominal, both scans didnt show anything but after second one i have big trauma as lady hurt my tummy so bad ,was very ungentle.So many doctors,so many beggins of help just tired and cant do much as in pain.I used to take very strong painkillers from GP that strong i couldnt talk easy ,also constipation after them and double pain i couldnt bear!.Trying to avoid meds now as too many in the past,simple painkillers only from time to time which not help fully.The pain is really ennoying hard to explain to a man for example isnt?Sad as waiting so long for any help trying be positive no choice really.Dont be to hard on yourself pls ,we r stronger than we think living with that horrible pain every day x🤗
It really is hard to explain to a man isn’t it they just don’t understand. Sorry you had such a trauma with the ultrasound scan. I’m considering trying CBD oil to see if that will help with the pain. I hope you get some answers and help soon. X
Hi Elissa,i just found out urgent waiting time to see genecologist in NI will be about 9 months 4 me ,dont know should i laugh or cry after 2,5 yrs in constant pain.Well will do both 😂Hpe CBD oil will help u ,sorry 4 silly question but how this oil should be use internal or external?
Wow that’s long, I thought it was bad in England. I only got with a gynaecologist so fast because I ended up in A&E and had a large cyst on my left ovary so that made the process to see a gynaecologist quicker but everything since then had taken its time. CBD oil you put a few drops under your tongue, I think you have to research what’s the best one with strength and stuff so I need to look into it more.
Have a little google into it, it’s definitely worth a shot if it helps with the pain. I’m also going to look at diet too. Ive just ordered some clean greens from a company called Rheal to see if that helps with my energy levels and bloating. X
Hi Elissa, according to BBC news NI has the worst in UK waiting time 4 gynaecologist ,so winner😂😉Large cyst u got,sounds bad sorry.Do u mind me to ask u how large was it?I have history of cysts too.Natural remedies 4 pain relief sounds interesting will look into myself too thanks.
Bloody hell yeah it’s insane the waiting lists, hopefully it won’t be as long fingers crossed. My cyst was 8cm and shrank on its own but it took a while.
Yeah I think looking into natural remedies is worth it, if it can help then bonus as we won’t be using so many pain killers. X
I was in a very similar position to yourself a few months ago, endometriosis and the process for diagnosis is mentally so draining and exhausting and made me feel very lonely. It’s completely understandable how you feel. I had to be admitted to hospital several times with the debilitating pain, and then was advised if I saw my gp to send a letter to the gynae consultant it may help bring the lap forward. I also got in contact with the consultants PA which you should be given their number if you call your hospitals switchboard and explain how bad the situation is. Keep pushing for a result and you will get there, be assertive with the doctors as they often are to patients but at the same time be careful not to over step the mark. I’m sure you will get there! Good luck with everything xx
Thank you, it’s hard isn’t it waiting for the initial appointment to happen. I’ve spoken to my consultants receptionist and she was very abrupt and quite rude, she said I needed to go back to my GP to get her to see if she can move my appointment to more urgent. I’ve since been to my GP again and the ultrasound came fast but I might try calling again to see if there’s any update on waiting times. I’ve looked into private but with me already starting the process it wouldn’t be covered so I’d have to foot the bill and it’s just too much.
I completely understand you, I had a look into private treatment but it’s just so costly. It’s very frustrating when receptionists are rude and I find being younger I get taken advantage of but it’s just important you don’t let that happen. Yes I’d say it’s definitely worth ringing them to keep reiterating how bad and difficult the situation is- particularly the pain. I have faith you will get your appointment soon, keep your head up! X
I think when you are in constant pain it’s hard to be happy. Also with Covid and now war the world is a hard place to be in. Maybe tramodol instead of just naproxen will help the pain. I hope things start to get better for you. Maybe talk to a friend about how you feel. I wish you luck.
Hello thought I’d pop on too. I’ve been on the waitlist for gyn now for 18 months in Scotland so you can imagine the different things I have tried in the meantime with help from my GP. I found that when I was using the pill my mood was horrendous, I was really unable to control my emotions, constantly argued with my partner and felt depressed and low. It became a decision between the horrific pain or the awful mental health and I chose to come off the pill as I really couldn’t cope with how awful I felt mentally. I take cocodomol and naproxen which is the only combination I have found to at least numb the pain to the point where I can sleep or do very light activities. I had a private internal scan as I also found the wait time to be playing havoc with my head which showed up that I had adenomyosis.
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Undiagnosed Endo? 
Fed up
Given no options but the pill
I’m such a mess 😫
I'm tired of waiting... (rant)
