Hiya. I'm new to all this. Iv never posted online in a community like this. I was diagnosed with endometriosis 9 years ago. Had surgery 8 years ago. Unfortunately in the last 2 years its came back. Been referred back to gynecology. Consultant asked for mri. I got my results back a few months ago via a letter. Which says it looks like the endometriosis is back and there was a concerning feature on the bowels. I'm on a waiting list for surgery (been told its about 18months to 2 years wait) iv tried to ring the hospital but no answer. Today I'm having such a violent flare up with my belly. Local gp don't seem to take it seriously. How do I go forward? I'm so tried and fed up with pain day in day out. My endometriosis nurse only work on a Monday and Tuesday so can't even speak to her today. I'm literally feeling so depressed from this all. I have had issues with my bowel movements for several months too. I feel so alone 😔 does anyone else suffer bowel endometriosis and could tell me their experience please x
Endometriosis pain: Hiya. I'm new to all... - Endometriosis UK
Endometriosis pain
Hi, have you tried calling your consultants secretary directly. Whenever I have had issues I asked to speak to the consultants secretary and then she will normally always come back to me with information or schedule a further appointment. I also never get anywhere with my GP. Hope you get sorted
Hello, yer I have tried to ring the secretary but no answer or phone call back yesterday. The endometriosis nurse only works a Monday and Tuesday xx
Unfortunately with endo on bowel you need treatment at bsge centre and they do have long waiting lists. You may want to join A Facebook group I’m on as there are lots of ladies there with experience of bowel endo
I have bowel endometriosis.When I’m due on I get sharp stabbing pains in my right butt check , sometimes when it’s extremely bad it comes and goes when I die on that I can’t move and have to let the pain pass.
When I also due on I get really constipated but also it can hurt to pass bowel movements then when I do come on the pain can subside a little and I just bleed from my bum mainly just on toilet paper when I have a bowel movement and then I can also have the stepping pain again after my period but normally only a couple days then it goes and I can finally also go back to normal bowel movements
Hi, I feel exactly the same. I’ve got endo on my left ovary, uterus and bowel. I was diagnosed 2 years ago when they did a diagnostic lap but they didn’t really do much else at the time, I suspect just some adhesiolysis. They’ve put me on combined pills to slow down the endo but I don’t think the pill is really doing anything tbh. Thankfully i was pain-free up until a month ago, so I’m quite new to this pain aspect of endo but i can tell you it is unbearable. I’ve been having pain 6 days in a row now and i started taking cocodamol yesterday as paracetamol doesn't seem to help anymore. Last month i had 4 days of pain. I’m waiting for them to review my latest ultrasound but i suspect i’ll probably ask them to speed things up a bit because of this pain that’s killing me.
Heya everyone. I wanted to post an update. So a few weeks ago I saw my endo consultant face to face who was lovely.He said the mri indeed has shown deep infiltration of the bowel. I'm booked for for laproscopy on 1st of August as he pushed me up the list due to constant pain and problems with my bowel movements. However he has said he won't be able to treat the bowel on this surgery, which i understand. As he need to another specialist to be involved.
When I got the letter through the post about our discussion we had. He mentioned about later needing "very major surgery" which has hit me after reading it on paper.
I'm also starting to have severe upper chest pains and more nausea with this all so I'm wondering what that's about.
Pain relief for endo nightmare!
Still no luck, about endometriosis 
Endometriosis stage 3 or 4 ?
Bowel Endometriosis?
Pain relief for endometriosis 
