If your not being heard : Hi If you feel... - Endometriosis UK

Endometriosis UK

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If your not being heard

Moonandstars1 profile image
5 Replies

Hi

If you feel like your doctor isn’t listening to you what can I do?

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Moonandstars1 profile image
Moonandstars1
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5 Replies
Pixie_Pumpin35 profile image
Pixie_Pumpin35

Change your doctor. It can easily be done.

Hunter-23 profile image
Hunter-23

Change Dr's.Research and take in a pain diary.

Reiterate how it's affecting you and your life.

If you're sure it's Endo, ask to be referred to a specialist so you miss out the middle man.

I asked to be referred out of area as my Dr's weren't concerned about the pain and told me it's something as a woman I have to deal with.

After I'd seen the specialist and had tests etc done I emailed and reiterated the fact that I'm a human being and not a number nor a statistic, how the pain was affecting my life and mental health as well as suppressing my ability to be a good mum to my two young children.

It takes an average of around 8 years to be diagnosed, it took me 20 active months from the first day I mentioned to the Dr's the pain I'm experiencing isn't normal.

This has all been during covid too so I would not allow them to use that as an excuse for a slow time to help, nor would I allow yourself to be messed about!

I had my laparoscopy nearly 3 weeks ago now where they found and excised endometriosis.

Hope that helps.

Completely agree with the pain diary - it will show any doctor that you are taking your pain seriously and so should they. Can you ask for an ultrasound or even more so, a Transvaginal Ultrasound - that can help.

Keep searching until you find a doctor who has knowledge on endometriosis. xx

Milly124 profile image
Milly124

Change doctors , I honestly over 7.5 years saw about 20 different drs until someone took me seriously, please keep going back demand to be referred don’t take no for an answer! I hope you get somewhere soon xxx

Bluesea7 profile image
Bluesea7

I saw a consultant nurse she listened.

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