Not in your head: Well I had my lap... - Endometriosis UK

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Not in your head

helen87 profile image
5 Replies

Well I had my lap yesterday where my surgeon found endo. I cried. I cried because I didn’t want to have it but also because I’ve spent the last year feeling like I was slowly losing my mind as my pain got worse but everyone was telling me there was nothing going on. Even lying in the anaesthetic room I was full of self doubt, that I was wasting everyone’s time.

So to anyone currently fighting with their GP or waiting for their lap. Trust yourself. Your pain isn’t normal. It isn’t in your head. And you deserve better. xxx

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helen87 profile image
helen87
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Nicola2401 profile image
Nicola2401

Totally with you on this. Even just before my 2nd lap 3 weeks ago, I was about to go down to the anaesthetic room and thought to myself "what if it hasn't come back and this is all a waste of time", as a GP had told me there was "no way" it could have come back after only 18 months.

It had spread to 4 new areas.

Wishing you a very speedy recovery xxxx

Harry89 profile image
Harry89 in reply toNicola2401

I’m going in on Friday and this is literally all I can think about. When I went in 3 years ago they only found a small amount but this time round the pain is so much more consistent and on a daily basis. I don’t have periods anymore as I’ve had the coil so I’ve had so much doubt in thinking that I am going to get to Friday and that they will find nothing and that I’m then back to square one. People a part from a couple of friends are avoiding speaking to me about it non of my family have asked me how I am feeling about Friday. To the point I’ve got a friend coming with me instead because they are more supportive. Feeling so anxious about it :( sorry for the long rant! Hope you are both recovering well xxx

Nicola2401 profile image
Nicola2401 in reply toHarry89

So sorry to hear you're going through this. It's difficult enough coping with the pain & other symptoms on a daily basis, so it can't be easy with the lack of support. It can be hard for some people to sympathise when they haven't gone through it before and can't imagine the pain, but that's no reason not to be supportive. You know your body better than anyone, and the fact that they have found it before, no matter how much or little of it there was, means something.

Even if they don't find any this time around, they might discover another cause of your pain, so try not to think that way (I know it's easier said than done).

I really hope you get the answers you need and sending you lots and lots of luck for Friday xxxx

Harry89 profile image
Harry89 in reply toNicola2401

Thank you really appreciate it xxx

Its awful us ladies are made to suffer these symptoms as "part of being a woman. "

I also felt relieved to have an explanation for my suffering- I also worried they'd find nothing wrong and was unsure where to go from there.

Glad you got a diagnosis and I know its not a nice condition to have but at least you know what was causing it and have proven the drs wrong- my gp made me feel like it was in my head. Totally unacceptable and unprofessional.

Lovely uplifting post to those who are struggling to get a diagnosis xoxo

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