This is tourture!: Feel like I cant handle... - Endometriosis UK

Endometriosis UK

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This is tourture!

Crazycatladyjones profile image

Feel like I cant handle thisnanymore! My GO suspects bowel endo awaiting an appointment now from gyne god knows how long that will take and in the meantime its just constant pain and agony every month. Im at ovulation stage and i feel like i can barley straighten up my body its just so hard knowing a diagnisos or trestment could be so so long away.

Stopped contraceptive inplant to try and conceive later in year and now I just want it back in as I cannot handle this month in month out feel so drained and dnt know what to do anymore!

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Crazycatladyjones
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ZiggyandBC profile image
ZiggyandBC

Hey, depending on where you are in the UK (everywhere is slightly different) you may have a while to wait. I was referred to a gynaecologist in March 2020 and had a telephone appointment in August 2020 and it still took 3 more months for her to put me on the waiting list for a laparoscopy. I’ve been waiting since November 2020 for my laparoscopy and I’m still waiting. I hope you get seen quicker but if you’re in a lot of pain it might be worth talking to your GP about how you can manage it in case you do have a long wait ahead xxx

Crazycatladyjones profile image
Crazycatladyjones in reply to ZiggyandBC

Omg its a joke isnt it as I have been seeing on this fourum it does seem to be a very long wait. I am due an appointment with GP soon as awaiting results from a scan so I will ask how long it may be. I think the whole system is a joke and was a long wait anyway but now this covid has made it a million times worse. I feel for anyone enduring this condition I am not yet diagnosed so might not even be it but whatever it is not nice at all and more needs to be done about it xxx hope your not waiting too muchlonger now! (Im in Liverpool)

ZiggyandBC profile image
ZiggyandBC in reply to Crazycatladyjones

Thank you! I spoke to my consultant today and he said he’s happy to do my surgery as soon as he can so I’m feeling a lot better. My pain has got considerable worse during this wait which is very scary and I just hope I don’t have to wait much longer. I hope you get seen quicker than what I have, I’m in West Yorkshire ☺️ xxx

Crazycatladyjones profile image
Crazycatladyjones in reply to ZiggyandBC

Thats good news good luck yes I feel like I am worse each month which my understanding of endo is it progressive so each month it will get worse? Thats why its so shocking jow long you have to wait for input and treatment!!!!

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