Moon_maiden in reply to Bettybloo

I’m in England, GP’s can do much more than may happen. My first referral to a centre was initial gynae, second was GP. If you request your notes from the private hospital this may help your referral, they can’t charge for anything that’s electronic. Your previous consultant can also refer you, or if you were happy with them and do NHS add you to their list.

🤞 for you 🙂

Lindle in reply to Bettybloo

The NICE guideline doesn't help with this as they give recommendations and aren't involved in setting standards or prescribing services.

So as you are in England the NHS England treatment specification applies for the treatment of severe endo in tertiary endo centres. This is actually a requirement set in law under the 2012 Health and Social Care Act. The link is below.

england.nhs.uk/wp-content/u...

The following sections apply. Since you have a history of known severe endo your GP refers you. I would copy the guideline and give them a copy for future use as well as insisting it is followed.

3.2 Service description/care pathway

3.2.1 Summary of the service provided is explained in the following steps:

Referral from Primary or secondary care (including detailed clinical information,

investigation results and laparoscopic images/video)

3.2.2 Referral

Patients with known severe disease, which has not been adequately treated or has recurred, are likely to be referred by primary care clinicians. Gynaecologists in secondary care, who identify severe deeply infiltrating endometriosis or recto-vaginal disease at laparoscopy, or open surgery, will refer patients from secondary care to an Endometriosis centre. Laparoscopic images and or video, of suitable quality and format will be included with the referral wherever they are available as this may prevent the need for repeat laparoscopic pelvic survey after referral.

3.4 Any acceptance and exclusion criteria and thresholds

The service will accept referrals from GPs and secondary care clinicians in Gynaecology, Colorectal surgery and Urology. The service will also accept referrals from other providers, particularly when the referring service is not accredited to undertake the clinical care the patient requires. The service will accept referrals for patients who meet one of the following criteria:

Women with a diagnosis of severe endometriosis

Non-severe endometriosis refractory to treatment

It is also covered by the RCOG Standards for Gynaecology Care, that covers the whole of the UK. Specialised treatment in centres is covered at section 3.

3.1.2 DIRECT REFERRAL TO

SPECIALIST GYNAECOLOGY

SERVICES

With conditions where there is a low probability

of successful management in general gynaecology

services, it may be appropriate for the primary

referring clinician to refer the woman directly to

specialist gynaecological services

rcog.org.uk/globalassets/do...

I run a UK endo guidance group if you would like to join. We can't give links but feel free to pm me.

kelsbels88 in reply to Bettybloo

You’re very welcome it may seem far away but there is an end to the tunnel keep your chin up 😉 xx