hello. I am posting on here as I have suspected endometriosis but am awaiting a gynaecology appointment and lap. however I am not very clued up on endometriosis and my gp isn't helpful.
can endometriosis call pain all the time? I have constant pelvic pain but a week leading up to my period and around ovulation I am in agony. A doctor at 111 prescribed codeine and mefenamic acid which eases the pain slightly. Can endometriosis cause fluctuating pain?
thank you in advance x x
Oh darling, endometriosis can cause many things, from inflammation to bloating and pain. It can even mimic some allergic reactions and then disappear all of sudden.
I’ve had a reaction where if I was exposed to the sun I would have rashes around my arms. I had for a couple of years than it disappeared completely. Then it appeared again. I’ve had inflammations like tennis elbow and golfers elbow also gone after 3 months. I’ve had pain like someone was pulling out my organs from inside out. Endometriosis is like an individual experience. Everyone has a different experience. But yeah, yours could be endo too. If you get diagnosed for sure, than welcome sister to the warriorhood of endometriosis. We are all warriors here. We have been enduring a horrible and excruciating pain.
Wow this is super interesting, I had a reaction to the sun years ago and swelled up with rashes. (the air stewards had to put my hands in the ice tubs for relief on the flight home from holiday) The pain was awful and the drs had no idea what caused it. Every time I went in the sun after I had to be really careful as it would come back but not as bad. Until one day it just stopped 🤷♀️I have been suffering with pain for years with my periods and ovulation which seems to be getting worse or last longer.
The Dr has recommended the mini pill instead of exploring by referral because of the current situation but I really don't want to start that and mask what my body is doing.
Is it OK to just take pain relief and natural things and see how it goes and maybe ask to be put on the waiting list.
Well, you are having the same as me. I also was only taking pain killers like ibuprofen and naproxen. However, I have decided to take progesterone and will be on it very soon. Endometriosis depends on oestrogen and I’m getting sick and tired of every second month or so I get a surprise disease mimic from endometriosis. I’ve been lactose intolerant, I’ve been allergic to sun, I had multiple inflammation around my body, from time to time I’ve been bloated, I’ve been having all sorts of inflammation and now I’ve had enough.
Wow bless you, I am not surprised you have had enough! Have you been diagnosed? I really hope the progesterone works for you 🤞I think that's where my hang up is. Despite having pain for 15plus years and going back and forth to the drs for years it is only this past year where I have even thought of endo so the more I research the more I can relate to and would really like to know one way or another or at least talk to a specialist before committing to different treatments apart from pain relief.
Fingers crossed you get on well with pill and they start working quickly x
Yes, I’ve been diagnosed 7 years ago.
While I was pregnant I had very little to non pain. That because my progesterone level was high. I need to see if man made progesterone has the same effect on me. X