Pain driving me crazy

[Jaye75]

I'm down for a laparoscopy with suspected bowel endometriosis, I want to ask anyone diagnosed with bowel endometriosis do you feel constant pain on your right side stomach where your colon is? I get this and the deep back pain everyday ...its like both sides (also around kidney area both sides) when ovulating and when I have my period and as horrid as it sounds I just want everything took out to stop this constant pain it drives me insane , at times it feels like my kidneys are being pulled down ....please someone tell me this is not just me as my mam had cancer due to the same thing and I worry so much...I'm almost 46 so no longer wanting children. Thank you.

[Jellybean20]

Hi!! I’m unsure of how far or widespread my endo is but doctor does suspect it’s on my bowel. I have terrible pains on the right hand side and I actually feel like there’s a vice inside my back cruising my insides. It’s a horrible pain. Not excruciating just constant! Does that sound similar 🤣 my doctor is hopefully organising me an mri to asses the full extent before discussing surgery but I’m absolutely on the same page as you, I want it all gone!

[Jaye75 in reply to Jellybean20]

My back feels pressured just on the right but the front pulling/dragging and nipping inside feeling is constant it's too far up for gyno but too low down for gallbladder lol ....your way of describing back pain sounds like my front pain ...omg...why do we women have to suffer I think all on this site will be very happy once surgery is back up and running. I know it's going to be painful but I honestly dnt care as long as the daily torture has gone I can deal with it lol

[Moon_maiden]

I used to get pain on the right with periods for years, even spent a couple of occasions in hospital for suspected appendix, unfortunately they didn’t offer alternative conditions so I just ignored it.When I had hysterectomy, he confirmed rectovaginal endo. I still suspect there are adhesions though as still having issues.

I started Pregabalin couple of days ago, I think it’s helping the pain. This is on top of Tramadol, paracetamol and Amitriptyline. It gets ridiculous.

I was diagnosed just over a year ago at 51, don’t let them say you are too old for an endo diagnosis, or that it’s in your head. After a year of constantly seeing GP’s I went for a private consultation.

[Jaye75 in reply to Moon_maiden]

Yeah a&e a lot for me with suspected appendicitis/gallbladder/broken rib.....none of which they thought ....also get told its colic of some sort they have given me all those painkillers in the past but I didnt like feeling out of it lol I use a tens machine a lot and it does help i also have the usual meds for during my period, also had my pre op appointment but no surgery happening atm so just have to grin and bare it

[Moon_maiden in reply to Jaye75]

🤞it won’t be long before things get going, sounds like you’re top of the list at least. Has your GP commented on lap? I never told mine about the gynae appointment initially. They had done a referral but it went to urogynaecology, and this didn’t feel right so cancelled it.

Afterwards I felt justified when I sent the letters on 😂, felt so good to prove it wasn’t in my blasted head 😁

[Jaye75 in reply to Moon_maiden]

My gp referred me as I had transvaginal and ultrasound scans also the ovarian cancer blood test he was quite good all were done quickly this covid has just stopped everything. Yeah it is annoying when others think your exaggerating I just want to punch them on the nose 🤣🤣

[Moon_maiden in reply to Jaye75]

Looks like you have a good GP, stick with talking to them rather than another GP in the practice.Trouble is with many conditions you can’t see anything. It surprises me the lack of understanding these days, especially in the medical profession.

A&E last week I asked for intravenous painkillers and the nurse said it only last 12 hours I said that’s fine, just need some relief, they still wouldn’t.

Have you got much support around you that doesn’t judge?

[Jaye75 in reply to Moon_maiden]

My mother is the only 1 that sort of understands as when she had it she didnt have constant pain just a lot of bleeding , and yeah his the only dr I see now. Totally agree with some drs they really havnt a clue all the know is what they have learnt from text books they dont go thro the daily turmoil. A&E just want you out when they have done the usual tests I ve been given codeine many times and did once have morphine but took a bad turn were I was dripping with sweat my heart rate went really high and blood pressure, they were in the room for an hour apparently until my body calmed down I think they overdosed me as I cnt remember much but my mother said it was scary machines beeping and they were going to put me on a ventilator...I dnt like morphine anymore lol

[Moon_maiden in reply to Jaye75]

Wow that was some reaction, they must have given you too much. I haven’t experienced that, very scary. Although like you say you weren’t aware, sounds quite good at times. 🤦‍♀️

[Moon_maiden in reply to Jaye75]

Hi Looking back at old posts, mainly about bowel and looked at yours again. How are you getting on? Did you manage to get anything sorted?

[Dozzer06]

Ive got exactly same symptoms as you and I was thinking it was cysts but maybe it's not? If you ever want to talk message me anytime x

[Jaye75 in reply to Dozzer06]

I had complexed cysts but they went after a few periods as I was thinking the same (I had transvaginal and ultrasound scans to check) I'm glad although not that yr in pain someone else has these symptoms as I do start to question myself thinking is my mind playing tricks and what not lol i will be so relieved when i get my lap so i know how far it has went but I have an awful feeling it's going to be wide spread as my mother was the same she had it deep and that's where the cancer was hiding, I really do feel for those waiting for diagnostic surgery it's awful.