Electric/ burning & numbness in legs

[Lily1986]

Hello.

I am in pain daily but more recently I’ve been getting intense lightening/ electric shock pains in my groin and thighs. This is a accompanied by burning and numbness. My right outer leg is now completely numb (this has happened before but without the pain).

I do have stage 4 endo involving bowel, adeno and overactive bladder for which I’ve had 5 surgeries including two excision, removal of left ovary & both Fallopian tubes.

A recent MRI confirmed rectosigmoid endo, dense adhesions and adenomyosis has returned (again).

I’m in pain every day with my back and pelvis which radiates down my legs to the point I can’t sit, stand or walk for long and have previously been told my nerves are damaged and take pregabalin.

This new pain and numbness happens at anytime but more so when laid down or sat and it is making it increasingly hard to get comfortable in bed.

Has anyone else had this type of pain too?

Every time I speak to my GP I’m treated like I’ve just landed from Mars and made to feel I’m wasting their time so really don’t want to ring them.

Best wishes to you all xxx

[Moon_maiden]

Hi

Sorry you are going through so much and MRI has shown quite a bit of endo.

I don’t have it in the legs, apart from part of my foot going numb after op, but that’s settled. I do have pain still in the abdomen and I find it increases with moving, bending, sitting, even lying can be difficult to get a position. There is a slim chance that I’m still healing from hysterectomy in November, but that area feels great, it’s the intestines that hurt. Eating is still an issue. Tomorrow I’ve booked to see gynae for a follow up privately, couldn’t wait until 22. I want to find out if there are adhesions there. I’ve also been told it’s nerve damage. GP and they are all of the same mindset, that there is a psychological aspect to it, I’ve told them it isn’t, bluntly 🤦‍♀️

What meds are you taking? Can you back to gynae for advice, they are still working, but might take a few days to get back to you.