Support for the other half's, family, friends etc

[Cjs93]

Not sure if something like this already exists or what you all think. My other half is forever asking why I'm always tired, why I want to shut myself away from the world etc and I thought it might be handy if there was some sort of support group or monthly newsletter that could go out to those who know people with endo and maybe don't quite understand it all? Or need help understanding / coping with those who have endo. Let me know what you all think

[AllWeNeedIsluv]

Great idea x

[AllthatGlitters]

Yeah definitely 😘

[PurpleSynesthesia]

Fab idea - think that sounds very helpful. A few of suggestions that might be worth considering:

I think a newsletter would need to include a permanent section that outlined the huge list of symptoms, so new readers can get an informed idea at a glance. Would also be good to include different testimonials from various endo warriors.

Not sure how many relatives would join a support group, but would be good to have it running alongside the newsletter, including links between the 2.

Go for it 👍🏼!

[Cjs93 in reply to PurpleSynesthesia]

Thanks for all the info! I think you're right and a newsletter may be better! I will have a look into it

[Moon_maiden]

The endo uk site has some info you might want to show them. There are local groups as well for sufferers, but maybe others could be involved with these as well.