Zoladex warning PCOS cysts

[mrsk8cook]

Hello My lovelies. It has just come to my attention., all a little to late unfortunately, a Zoladex side effect is cysts on ovaries. Woman with PCOS in particular require close attention while undertaking treatment. I'm not sure why I was overlooked, I guess just another medical oversight. Hugs and sunshine xxx

[Moon_maiden]

How are you feeling at the moment? That’s quite a discovery. You’d think they’d be checking these things a bit more. Although that’s probably a stupid thing to put given they only half listen anyway. I’m not aware of any ovary issues, although they don’t show well on scans and he could only see one at lap. So I’ll find out more next week if they’ve been effected. Might explain increase in discomfort.

[mrsk8cook in reply to Moon_maiden]

Not very happy my love... not happy at all! I need others to know prior to starting. Not halfway through month 5. It's like so very important!! How could they not tell me? So cross. X

[Moon_maiden in reply to mrsk8cook]

They should have done if there is a history. It’s obviously the ‘in thing’ for endo as it means they can say try it for six months. Just seems like malpractice if a person is given medication that knowingly causes other issues. So much for the Hippocratic oath.

What have they suggested to rectify things? If that’s possible

[BecWa]

I am so pleased I refused Zoladex and insisted on an operation to remove my Endo. It is now 2 weeks since the procedure and I am pain free and now have absolutely no pain when opening my bowels. Zoladex was not originally devised for Endo. It is a drug which not only affects Endo but other organs too and bone density. Please consider the long term effects before agreeing to Zoladex.

[mrsk8cook in reply to BecWa]

I wish I had the choice my lovely... but I'm at the pointy end of the stick now. So I've got everything crossed for a big YES to surgery, even if it provides short term relief, I'll do anything at the moment xx

[Thecrazypugglelady]

Thank you for sharing this! I got told i may have PCOS but only tested for endo in my Laparoscopy and have been on zoladex a longtime! My pain is hurrendous they think its nerve damage but im convinced its my ovary! This may explain my pain. I also didn't realise that HRT thickens your blood neither! I do feel like we are lab rats! Just a guessing game its much appreciated sharing this advice though! X

[mrskiki in reply to Thecrazypugglelady]

Exactly, I was given random one off prescriptions when I was younger, endo was not diagnosed, they just prodded me and said they couldn't feel anything. If I pushed they occasionally picked something off a list that fit a symptom and hoped I went away for a while. Not treated as a whole person.

[Thecrazypugglelady in reply to mrskiki]

Its distugsting! Especially when you made to feel like its in your head. Your right they hope you just go away and don't come back! Well ive haunted my consultant 😂😂😂

[Crystal1534 in reply to mrskiki]

😥

[mrsk8cook in reply to Thecrazypugglelady]

"They" told me even after all is said and done... I would never be able to go on HRT. X

[mishhenda]

What symptoms did u have

[mrsk8cook in reply to mishhenda]

I have DIE tethering, adhesions. I am post hysterectomy (ovary sparing.. the other is strangulating my bowel with adhesions etc). So very very painful.

[razzledazzle1]

Looks like I was overlooked too!! I took Zoladex for six months a couple of years ago after surgery. I suppose the only good thing to come out of the Zoladex is it completely got rid of two large chocolate cysts I had.. but I wouldn't have known that unless I went to get a second opinion!

Hope you're well xxx

[mrsk8cook in reply to razzledazzle1]

It has been a rough week. I have 8 days until 6th zoladex and find out if the surgery can be performed. They had a "team" meeting as apparently the surgery I require is "complicated and risky" ... such soothing words coming from a health practitioner. So 8 days... anxiety is definitely through the roof (I expect that the hormones wouldn't be helping with that). I am receiving psychological counseling... I recommend this to everyone, what we go through, are going through is incredibly traumatic and it's ok to get some "coping tools". 8 days to go but who's counting! Hugs and sunshine xxx