Any tips for worsening pain?: Hi everyone... - Endometriosis UK

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Any tips for worsening pain?

EllieMc145
EllieMc145

Hi everyone,

I had a diagnostic laparoscopy at this end of this July, along with the insertion of the Mirena coil. I'm still in incredible amounts of pain, and it's getting worse by the day. Nothing seems to be touching it, I've gotten to the point where I can't even do my housework or the dishes without taking a break. I'm at my wit's end and was wondering if anyone had any tips or advice for coping with this?

Thanks in advance!

16 Replies
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Hi sorry to hear you are still in so much pain. I haven’t had my lap yet but I’m waiting for it, I’m nervous about the post lap pain but I can’t offer any proper advice from experience sorry.

My friend Post surgery used an electric heat pad constantly wrapped round her tummy to help with pain though.

I hope you have less pain soon xx

I hope your lap goes well when you have it! The pain from the op itself wasn't too bad for me, I was just very bloated and tired all the time.

That's a good shout, I've used hot water bottles and heat packs etc, but I'll look into getting an electric one. Thank you xx

Have you made any changes to what you eat to help with inflammation? I found cutting certain foods out really helped and calmed the pain.. also ice rather than heat?

EllieMc145
EllieMc145 in reply to H4PP1

I have, I've minimized the amount of processed food and red meat that I eat, as well as taking omega-3 supplements to help with the inflammation. I've not found it helpful as of yet, but I'm still going to work on cutting them out completely.

I hadn't thought of ice, I will have to try that, thank you!

H4PP1
H4PP1 in reply to EllieMc145

Also Magnesium.. I find bath full of epsom salts really helps.. takes time when you take the supplements though but it really helps. I have just started a journey with a nutritionist and it is helping me

EllieMc145
EllieMc145 in reply to H4PP1

Oh I hadn't thought of taking magnesium ones, I will look into that! I usually have epsom baths when I go back to my parents, though sometimes it's hard to sit in there because of the pressure on my back and hips. I'm considering seeing a nutritionist at some point, I'm glad you've found it helps you! x

H4PP1
H4PP1 in reply to EllieMc145

I would highly recommend it, they say your gut and hormone levels can have a big impact on pain and pain management as a result of inflammation being reduced through eating and sleeping well. good luck !

Did you get an endo diagnosis and if so where is the endo, what stage and did they treat it?

EllieMc145
EllieMc145 in reply to Lindle

I've not had a diagnosis as of yet, my lap was very short and the surgeon said she didn't want to see me again, so I've gone to get a second opinion. I'm back on the waiting list to see another gynaecologist who will hopefully at least point me in the right direction of some relief. The only treatment was the Mirena coil, and I've not found that helpful so far x

Lindle
Lindle in reply to EllieMc145

As it was a diagnostic lap did they say on the discharge note that you don't have it? x

EllieMc145
EllieMc145 in reply to Lindle

It doesn't say anything about endometriosis, just the insertion of the mirena. The doctor who I'm currently with has suggested that it may be adenomyosis, but we're waiting on the gynaecology referral to say anything else x

Lindle
Lindle in reply to EllieMc145

I'm a bit confused as a diagnostic lap would usually be done in gynaecology. I would apply for a copy of the lap report to see what it says.

EllieMc145
EllieMc145 in reply to Lindle

It was all very confusing, I had to push for the surgeon to tell me about it afterwards, and even then they were somewhat reluctant. That's a good idea, I'll see if that's something I can do, thank you x

Lindle
Lindle in reply to EllieMc145

Yes you can. I have done a detailed document that guides through the process of getting your records if you want to pm me. We can't put links on here.

I had the same thing and was in lots of pain, I went to the doctor and it turned out I had a PID infection. It’s worth going to the doctor to rule that out?

EllieMc145
EllieMc145 in reply to curl123

Oh that's a good point, I hadn't considered that because the pain is still so cyclical. I'll reach out to my doctor, thank you x

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