Worsening pain- causes?

[Beejc]

I'm looking for some advice....I had a saplingo oophorectomy? in March of this year. As I had my ovaries removed I've been taking Estelle HRT as suggested by my GP. My periods are still super heavy and my endo pain has dramatically increased. My GP said that the only way to cure the pain, is to stop the HRT which she wouldn't advise?! She has said that once I'm through the menopause the endo will disappear- not sure this correct. When I asked for a referral to an endo specialist she said there was no point as they would say the same?! Any advise...? Tia

[Shellfinboo]

Is there another GP that you can see? Just to push you off is not a solution I would certainly be going back and pushing them for a referral

Have you just had one ovary removed then with the salpingo? They can do just the salpingo oophorectomy which just takes one ovary and one tube or unilateral salpingo-oophorectomy which will take both. I'm just discussing my options with my Gyne now, if it's just one side they said it wouldn't be effective but I wouldn't need HRT. With the complete removal I would be they said they would need to use only low levels of HRT which they may need to adjust because it's a balance between preserving things like bone Heath but not having enough to feed the endometriosis but that both operations may not deliver a cure . I would certainly push to be seen by a specialist so they can make sure they have your HRT right and you get some help. Good luck

[Beejc in reply to Shellfinboo]

Hi. Thanks for your reply.

I had both ovaries and tubes removed as they were stuck together with one stuck to my bowel. There was a cyst on each, with one of the cysts containing endometriosis. I think I’m going to go back and ask to be referred to Mr Mann.

[Judan]

Is it just one hormone or both in your HRT? The oestrogen would continue to feed the endo making it worse. Xxxxx

[Beejc in reply to Judan]

Hi. I’m taking Elleste duet 1mg - think it may have both?

[Fabbird]

Hi, from what I have read endo can certainly improve with the menopause but it doesn't necessarily disappear. Some women continue to experience significant pain.

In part it seems to depend on how long you've had endo and how advanced it has got. Even after the menopause our bodies produce some oestrogen so it can continue to spread.

There's also the issue of adhesions left behind either by the endo itself or surgery. These can continue to cause pain.

So we can hope for an improvement with the menopause, but it's certainly not guaranteed.

I'd keep pressing to see a specialist.

Good luck!

[Beejc in reply to Fabbird]

Thank you, I will!

[Nic2430]

Hi I had a total hysterectomy in Feb this year first few months were great n pain free pain has returned been for ultrasound n 6cm cyst found on my kidney which has grown as during hysterectomy I had a cyst on my left ovary attached to kidney keep being told it’s not endo relate as I’ve had hysterectomy but I know the symptoms n how my body feels but getting so frustrated at Gp saying it’s not n they won’t refer me bk to hospital so I know what u feeling as it’s so frustrating xx

[Beejc in reply to Nic2430]

I think we know our bodies so they should listen to us but unfortunately it doesn’t work that way does it. I’m going to push for a referral. Hope you get treatment you need.