After seeing yet another consultant, I am starting Zoladex next month as a treatment for long term Endometriosis. I was diagnosed in 2012 and have had two laparoscopies (one with helica treatment, burning). I am very worried about going on this and wanted some real life experiences explained to me rather than the science research I have been reading and scaring myself with!
Anyone been on this and can offer any advice please?
Hi
I was on it for 6 injections, that’s the max for endo that’s licensed, but there are people that I’ve seen that have been on it longer.
I didn’t think it was doing much, but now I’ve been off it a couple of months I think it may have helped a bit. Consultant who did lap (also Helica) thought it was helping as MRI didn’t show it in bowel as much as he’d felt at lap.
Endo specialist now doesn’t think it’s in the bowel, but then said the Zoladex may have masked it, this doesn’t mean it’s gone though. I’m having another MRI Saturday so it’ll be interesting to see the difference.
It did help the emotions, that was great. It may have increased blood pressure as I’d been if meds for that for for nearly a year, it went up May, but now seems to be back down.
I wasn’t aware of side effects otherwise. If you don’t like needles Emla cream really helps, I have to use it at least an hour in advance. I couldn’t have had the injection without it 😂
Unfortunately it’s an individual thing as far as reaction goes.
I don’t know if this helps.
These injections are not intended as a long term treatment for endo unless absolutely everything else has failed. You say you have had 2 laps - if these were in general gynaecology and you are still having pain you should be referred to a specialist endo centre if you are in England. Admin will be able to advise you of all the referral criteria and process.
I was on them for 7 months apart from mood swings and menopause. I don't regret them. I finally had my laparoscopy Monday.
Started Zoladex today
Zoladex - any success stories out there 🙃
