Excruciating headaches

[Joanne-L]

Hi, I'm waiting to see gynae for suspected returned endo!

Since Thursday I have had the worst headaches I've ever experienced! They literally wake me up early hours of the morning, stay for about 6 hours then pass again till the next day!

Has anyone ever known a link between endo and headaches? I'm being seen in Ambulatory tomorrow and they said I'll probably see a neurologist!

Thanks

[Melon365]

Hi Joanne-L

I suffer with killer headaches and migraines and they are linked to endometriosis. It is to do with the flux in hormone level I think. I went through a period of about 3 months when I was having a 2 or 3 day migraine every week. My gyne said that it was the coil which I had removed and it helped a little. I still get regular headaches but maybe have a migraine only twice a month.

I bought a hangover face mask that you but in the fridge and honestly it helps soo much!

xx

[Joanne-L in reply to Melon365]

Thank you so much!!

I'm pleased yours have improved a bit!

I'm hoping to get some answers tomorrow x

[Melon365 in reply to Joanne-L]

Good luck! x

[Moon_maiden]

I used to wake up with horrendous headaches, it was about the same time this started, but didn’t know. Took a sleep test, hired a machine for a few nights, and confirmed sleep apnoea, now using CPAP. Haven’t woken up with headaches since. An ENT consultant in the US thinks there could be a link with hormones and potentially Endo and apnoea. If I made that suggestion to GP I know I’d get a look of ‘really!’ 😂.

I only mentioned sleep apnoea to GP once I’d had the results back because I knew they’d dismiss it. Even in the referral letter he wasn’t convinced.

[GabriJ]

Yes I’ve had really bad headaches over the years too and since I’ve been diagnosed with endo realise it’s connected - they get really bad before my period. I’ve cut out sugar and caffeine and this really seems to help as they are inflammatory foods. I also mainly follow an anti inflammatory diet and headaches are now so much better.

[GabriJ]

I’ve also found that I grind my teeth in my sleep and I think this is to do with all the anxiety from my health issues - worth noting if this is something you do - you will notice if there are little tooth groove marks on your tongue - this causes me to have headaches

[Joanne-L]

After attending Ambulatory, the doctor did bloods and my iron and red blood cells were dangerously low! Hence getting the headaches! 2 iron transfusions later and the headaches have stopped!!!