Shall I regret my surgery (laparoscopy)? - Endometriosis UK

Endometriosis UK

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Shall I regret my surgery (laparoscopy)?

2 Replies

Hi ladies,

Im so confused. I had a heavy bleeding and constant lower back pain from Feb this year. I was waiting to see NHS gyno for months and then decided to go private. Doctor found small 2 cm fibroid pressing on uterus, but assured me my back pain is less likely caused by fibroid and if anything it can be endometriosis. He recommended laparoscopy hysterscopy to remove fibroid and check/remove if endometriosis is found.

it happened all very quickly, I just wanted to get rid of back pain as its so difficult to function when you cant sit, sleep or exercise comfortable due to constant pain. After surgery DR confirmed he found small endometriosis but it wasnt anything to worry about.

I am now 2 weeks after surgery, and my back pain is still there :( it makes me cry as its so painful at times and I feel I decided to go through laparoscopy to early!

What should I do next to establish cause of the pain? MRI?

Do you think with small endo I could potentially wait a little bit longer and maybe try some hormonal treatment instead of being "cut"?

Thank you

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lemon_mint profile image
lemon_mint

Hey @Eve833 deciding to go through surgery is never easy and often it's difficult to conclusively say if it were right thing to do, especially if the pain remains. There may be multiple causes of pain and I have been told by multiple doctors that is very hard to establish what it may be attributable to. Sometimes surgeons don't find/remove all the endo in which case the pain might still remain. Pain also may be be different, i.e. recovering from surgery. 2 weeks is still not a long enough time, perhaps try and a wait a little longer. Also try and not dwell on your decision to do the lap - if it has not made things worse and they removed some endo - it is already good progress and you are in recovery stage. Did they tell you where exactly they found endo btw?

I don't know if MRI is going to help - if it is endo causing pain, it is unlikely that it will show up on the scan, especially after surgery - endo is notoriously hard to detect on ultrasound / MRI - my scans dod not show anything and I had 3 MRIS in the course of 6 months (I was desperate to find an answer and just flew back to my original home country in Eastern Europe because it's way cheaper there (around £120 per MRI scan) and you do need a dr's referral) - can't say it is the best thing I could have done but it gave me peace of mind re. exclusing other potential gyne issues. If there's an issue with spine, nerves (i.e. not endo-related) then MRI could potentially shed some light/be helpful but it is worth speaking to a specialist in that area first to get a sense of direction.

One more thing you may wish to try and physio, pelvic floor physio or osteopathy and see if it makes a difference.

Bubble_by profile image
Bubble_by

I still have some pain too after my surgery... It has gotten better since march but it still hurts sometimes.

Two weeks is still quite recent, perhaps see how it goes and if you still have problems, go back to your doctor.

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