Other options than mirena coil?

[BRY-E]

I am asking for some advice, I was first diagnosed with Endo in 2015 via laparoscopy where it was discovered on my bowel amongst other places and the coil was inserted. I also already have the implant but I was told to keep that in. After some months still had pain as well as new issues with my bowel which made it almost impossible to continue to work and live a normal life. After another investigation, I was told that the coil was playing havoc with my hormones and I needed 6 months zodalex injections. I completed this 6 months course which was very tough!! After this, I was still in pain and had another laparoscopy in 2016 of which they discovered more Endo. After this last lap my pain has settled slightly however I have never been settled with the coil. I have suffered badly with the side effects and never felt totally happy with my hormones. I am in the midst of what I believe is a Mirena coil crash an am waiting to see my consultant about options going forward. He is very for the coil and protecting my womb against Endo and cervical cancer. however, I don't feel that happy about and want to know if anyone has other advice about treating and managing their condition?

Please help!

[Lizzymcn]

I can´t help, only sympathise. I had the coil inserted as a last effort at conservatively managing my endo. It was put in last January and I started to get very moody, hormonal and put on a lot of weight. By the time the lockdown had ended and I got to a doctor to remove it, I had put on 15 kilos (over 30 pounds). I was really dizzy for a few days after they took it out, but found that my mood improved dramatically. I have lost about the half the weight, and the other half is slowing coming off. I am on the waiting list for a Lap, which should be happenning in the next 2-3 weeks. The mirena is not for everyone. Having spoken to friends, some are very happy with theirs, and others have had big problems with it. Listen to your body, talk to your doctor.

[Noodle1984]

I have Endo, adenomyosis and fibroids. I started doing the pill back to back but I have a clotting disorder and my numbers got too high. The pill increases your chance for a clot. I was then put on just lupron but I would still get these crashes once a month when I was due for my injection. So now I have the mirena and lupron. I want the mirena out ASAP. I’ve had it for 6 months and my head is so itchy and dry and my hairs coming out in handfuls. I may go back to taking vissane (an Endo specific medication) and the lupron. I know that it’s important to keep on top of the medication to slow the growth and also to help the symptoms but it’s so hard on our poor bodies.

[RedbudTree]

It depends why they decided on the Mirena coil in the first place. I had one for about three years to try to control my “dysmenorrhea” (I couldn’t get any doctors to believe that it was likely endometriosis) because my stroke risk is high so I can’t take estrogen and some of the other drugs that would otherwise stop my period. I had a hard time with stabbing pain for the first few months and then had about 18 months when my periods got really light and my pain was better controlled, until out of the blue my pain started getting worse and bleeding got a little heavier each month (still not a full period) plus the pain was spreading from just during my period to during ovulation.

At first the gynecologist left the Mirena in and just started me on norethindrone acetate, which is similar to progesterone only birth control, but stronger. After a couple months of increasing pain I had the Mirena removed because I was pretty sure it was making my pain worse (I had an ultrasound to check its placement and it hadn’t moved but based on how painful the removal was, something must have been wrong). Now the only hormone I’m on is norethindrone acetate and I haven’t had a period or any spotting in months. It does interfere with one of my medications for a different health condition, which the Mirena didn’t, but depending on your situation, there well could be another option. Mirena is not actually for endometriosis so there shouldn’t be a reason that it would be your only option.