Endo talk

[Starley]

Hello all, I'm so glad I've found my way onto this page so I can finally speak with people who can relate to this condition as when I speak with people who can't relate to it they just don't understand because it's not a visible condition. Apologies if I'm constantly popping up on this forum but this is such a revelation for me! I just want to confirm that I am yet to be diagnosed, however 4 doctors have told me that it's "barn door" endometriosis, one doctor even suggests that I could be at stage 4 but due to Covid everything has been put on hold.

Does anybody on here suffer with constant fatigue? I literally take a nap every day, I sometimes feel so tired that I could literally sleep anywhere at anytime, it was a joke for a long time in our household and sometimes people would call me lazy but I honestly struggle to stay awake for longer than 8-10 hours and I struggle with being energetic. I'm a very heavy sleeper, there has been occasions where I've slept for the 13-14 hours straight, sometimes I get home from work and can't even remember falling asleep and then I wake up the following morning in my work uniform. I even find myself falling asleep whilst working and in my previous job I was stood up all day and found myself going to the toilets to shut my eyes for 10 minutes almost every hour.

[plotments]

Morning......yes constant fatigue its like you've been coated in a thick treacle and you drag yourself through the day even after sleeping your just as tired......so hard to deal with especially as I was so active.

Is there anyway you could reduce your working hours if being of while waiting for lap is bothering you?

[Dimah]

Such a validation to hear! The drs dont tell you anything about fatigue. They made me feel I was just a hypochondriac over complaining. I find it such a struggle just to keep the home running. Am always drained! Get wiped out from minor activity. I'm totally fed up now.

Had a laparoscopy about 10yrs ago and dont know what more to do. Scared to do major surgery because not even sure it will solve everything. I've stopped bleeding from the meds but fatigue and pain are totally wearing me down and I feel there's no hope. Ive become a boring drag and I feel lazy and a nobody. Is there any hope? I've stopped all carbs and that's helped somewhat but now always hungry.