Pregabalin experiences please: I am due to... - Endometriosis UK

Endometriosis UK
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Pregabalin experiences please

DAML8
DAML8

I am due to move from gabapentin onto pregabalin and I am looking for any ‘reviews’ and if it has been successful in helping with severe, constant endo pain and any side effects you have experienced. Any advice good or bad would be much appreciated.

9 Replies
oldestnewest

Hello.

I’ve been on pregabalin since March and doubled the dosage a month or so ago.

It’s helped slightly with my bladder at night but done next to nothing for the pain.

Initially I thought it had helped with leg pain but that didn’t last long.

I hope you have better luck xxx

Lily1986
Lily1986 in reply to Lily1986

Side effects haven’t been too bad, at first it gave me a drunk type feeling but now just makes me feel sleepy and very chilled out.

I’ve gained weight but think that’s more down to HRT or decapeptyl.

Hi. The Pregabalin did not work for me, possibly too strong for me. It made me lose my spatial orientation, at work I banged myself into the partitions although I had enough space around me. I felt light headed, unbalanced the majority of the time. I was completely dead to the world at night, defo solved the long lasting insomnia! The only problem was that it made me sleep in diagonal in bed, to the point that there was no space for my husband. He tried to push me gently but as I was completely drugged out, I never moved. In the end, he got up, picked my feet and manoeuvred me into my normal place so that he could have some space too. I never felt anything, never reacted to his manoeuvring! That was 10 days of 10mg a day treatment! I stopped.

I felt too unwell for very little benefits.

DAML8
DAML8 in reply to Anastasia17

That’s interesting...i have been exactly the same! My husband keeps escaping to the spare room once i’m asleep 🤣. I also feel very light headed, dizzy and stagger when i walk. All this...and it makes no difference at all to the pain ☹️. I think I’ll move on to trying something else.

Anastasia17
Anastasia17 in reply to DAML8

After reading a few posts from other endo sufferrers, I requested Amytriptilin and it did help a bit towards the pain, but had no effect on insomnia... at least my husband could sleep! :)

DAML8
DAML8 in reply to Anastasia17

Haha at least one of you can sleep. Ive been on amitriptyline before with no joy. I’ve tried most things and nothing seems to work. I guess im one of the many unlucky ones who just has to learn to live with it.

Anastasia17
Anastasia17 in reply to DAML8

CBD was amazing for pain, not just tummy pain, but pain all over the body, it made me feel more relaxed and also helped with insomnia. But, only buy from recommended suppliers. I bought tablets from H&B, some women didn't find them strong enough. My head was clear and I didn't have any of the side effects caused by strong pain killers. x

DAML8
DAML8 in reply to Anastasia17

That’s interesting. I’ve tried a few different ones but found them very expensive. What strength, price etc were yours, if you don’t mind me asking? I haven’t tried h&b so up for giving it a try. x

Anastasia17
Anastasia17 in reply to DAML8

They were the tablets (no bad taste) at 10mg I believe. I find them quite expensive. If needs be I may buy online from a recommended site that is a bit cheaper.

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