Ovary behind uterus?

[Noodle31]

Hi everyone. Just needed to vent, really. Maybe some of you can relate. Today I travelled two hours for a scan, where I found out that my right ovary is apparently positioned behind my uterus. A hydrosalpinx is also suspected. I am fortunate in the sense that the right ovary seems to almost be 'normal' size despite having originally been thought to be 8cm back in January - but the left has a massive (15-19cm) endometrioma. The scan today was supposed to show whether it would be possible to do a round of egg freezing from my 'good' ovary prior to surgery. Now that seems like it won't be possible as it would involve going through the uterus. Has anyone had any experience of their ovary being put back in the right place post-OP, to enable egg collection? And can blocked tubes ever be cleared or do they have to be removed? Apparently the ultrasound also shows my uterus has quite a bit of endo. This is so depressing. I feel like this whole year has just been a process of finding out crappy things. First I discover I've had an undiagnosed disease for all my adult life, then my urgent surgery to treat it is cancelled, and now even when getting a private scan this is what I find out. I know how depressing, but this has been one hell of a day and such a horrible year. It seems like this disease is always waiting to take some other glimmer of hope away. I'm sure I'm wearing all my loved ones down and can feel my long held dream of one day having a child of my own just receding further and further away. I don't even know how to process this much frustration and grief.

[Beanmcg]

Hey hun. Sounds like you are really going through it. I can relate to some of what you say and just wanted to share my story for a small ray of hope. Don't give up. At the age of 22 I was diagnosed with stage 4 endo and had quite extensive surgery to free up my bladder and remove lesions from various places. Doctors advised that I would be very unlikely to have children as the extent of scarring was very severe. 4 years later I had yet more surgery and my right ovary was sandwiched between the back of my uterus and bowels. It was so badly attached the dr thought initially I had had it removed. My uterus was laying in a retrograde position as it was being pulled out of place by all the adhesions. After that surgery I felt quite a bit of relief and prayed it would last. 2 years later I was rushed back in under the knife again with unbelievable pains which were just constant. Bowel pain, bladder pain etc. Had another lot of laser surgery and this time they had to free up my left ovary. Also followed up with 6 months of Zoladex injections (which turned me into an emotional/angry/psychotic nightmare ). I had no desire to even try to get pregnant as I was sure it wouldn't happen after all the surgeries and Doctors prognosis. Years of no contraception and never once getting caught sort of made me feel sure it just wasn't in my future. But 2 months after finishing Zoladex I went to Dublin for a weekend wedding with my other half. Once back home I started vomiting badly and felt like I had the worst delayed hangover ever. Cut a long story short I took a pregnancy test and it came back positive. Although I was told I may not be able to carry the pregnancy I decided to take my chances. Things were rough. At 33 weeks I developed renal failure due to hydronephrosis caused by endo scarring on ureter. Had to have surgery to place a stent and my son decided he was coming out. So blessed that not only was he healthy he was able to do everything the full termers were doing. So even though both my ovaries at different stages were scarred and bent out of position I managed to conceive. His little brother followed 2years later and I really do count my blessings. Sometimes, when we least expect it and all hope seems to be bashed out of us on a regular basis, something wonderful can happen. I really hope something wonderful happens for you soon. You sound like you need a little ray of light at the end of that long Dark tunnel of endo. I know we are all different and each case of endo seems to be unique to the individual but I was told I would never conceive and very unlikely to carry if I did. My body proved them wrong twice. I really do think the break on Zoladex, even though it was horrendous , opened a window of opportunity I wouldn't have had otherwise. I know I am one of the lucky ones but it can happen. Will keep everything crossed for you and the very best of luck. Keep your chin up and try to take care of yourself.

[Noodle31 in reply to Beanmcg]

Thank you for your message, that's a lovely story. Obviously a tough one, but brilliant ending.

[Dance_20]

Hello my right ovary sits behind the uterus too thanks to endo! I was first diagnosed with severe endo via laparoscopy last summer. My pouch of Douglas could not be unblocked so ivf was recommended. My ivf clinic initially thought that accessing my right ovary for egg collection will be challenging but they managed to conduct this challenging procedure with my consent. My egg reserve is very low again thanks to endo. Given that a needle had to be passed through the uterus I could not go for a fresh embryo transfer and had to wait for a month for everything to heal and ultimately had a frozen implant in Feb. They also gave me a month long low dose of busserelin injection prior to implant to suppress my endo. I fell very ill physically following my ivf treatment. I believe ivf triggered my endo and damaged my diaphragm which led to two consecutive collapsed lungs and I now have thoracic endo/catamenial pneumothorax

I am very sure when I had the endo operation last summer my right ovary was put back in the right position but within a few months the distortion happened again. I hope your ivf treatment goes well and if the clinic has good expertise they should be able to collect eggs from your right ovary but you will need to wait longer for your implant. Let me know if you have any further questions and good luck with everything

[Noodle31 in reply to Dance_20]

Hiya - thanks for sharing your story. I think most clinics are apt to be pretty wary of treating me pre op in part because the other endometrioma is enormous (15-19cm apparently). It really should have been all dealt with like the emergency it was and is, but instead I'm still here waiting. Very frustrating - heartbreaking actually.