Zoladex : Has anyone been given the zoladex... - Endometriosis UK

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Zoladex

Nikkinix profile image
11 Replies

Has anyone been given the zoladex injection without a comfirmed diagnosis of Endometriosis, ? I.e laparoscopy ect

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Nikkinix profile image
Nikkinix
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11 Replies
Linz010 profile image
Linz010

hi nikkinix

I have been put on zoladex without confirmed endo, I didn't even understand why my gyne had put me on it until my doctor explained that the gyne thought I might have endo

On month 3 now and all pain has stopped even pain I didn't think was related

Nikkinix profile image
Nikkinix in reply to Linz010

I had my last monthly injection 6 weeks ago as can only have it for 6 months. I'm the same nearly took nearly all pain away, but now can feel twinges coming back, mr panda basic said she how bad it get again, see you in 5 month. So worried it with return with avengeance.x

Linz010 profile image
Linz010 in reply to Nikkinix

So no extra investigations after the zoladex then? Its soo frustrating not knowing isn't it? To be fair I knew nothing about endo until I was put on this implant, I was so annoyed at my gyne for putting me on it and explaining nothing I went to her to find out what my pain was and in my mind I wanted tests to find out what it was so when she sent me away with a prescription I felt fobbed off I didn't want pain relief I wanted answers I've only been put on it for 3 months with a follow up gyne appointment next week what are your symptoms? X

Nikkinix profile image
Nikkinix in reply to Linz010

i have a constant draging around bladder and which worsen went i need a wee. movement like going over trafic hump when its bad are very painfull. its aches around lower back and and hurt more wen i need a bowel movement. the gyno just wasnt intrested same as you just fobed me off. alway reading about ladies having laparoscopic but he advised me againt that.

Rjb_88 profile image
Rjb_88 in reply to Nikkinix

You can have prostap with oestrogen only HRT for five years, might be worth a try if it comes back again!

Tiggy08 profile image
Tiggy08

I have just recently been advised to start on a trial of zoladex for 6 months without a laparoscopy, I saw the gynae team originally for an ectropion on my cervix and came away with an endometriosis diagnosis. I get horrendous headaches during my period, awful back pain just after my period and then the week between ovulation and my period I get shooting pains in my breasts. I have awful mood swings and anxiety towards my period and whilst on my period continue to get anxiety. My gynae told me it’s all related to the endo, which was a huge relief as I thought I was going mad!

Nikkinix profile image
Nikkinix in reply to Tiggy08

I have just finish 6 months zoladex, it did help 70 /80% but now I'm off zoladex 8 weeks, its come all coming back think and fast also have a prolapse which the gyno seems uninterested in, it is definitely getting heavier effecting my bowl but to the doctor. Again age 49

Winnie76 profile image
Winnie76

I have just finished 6 months of zoladex without a laparoscopy to confirm.

Nikkinix profile image
Nikkinix in reply to Winnie76

its fustrating that some people on the 3 4 lap but my gyno adviced me againt having 1.just more med i.e mini pill im 49. dont really want to start the mini pill

Winnie76 profile image
Winnie76 in reply to Nikkinix

I know what you mean! I'm only just 25. My Gynae dropped off the face of the earth back in March, granted I could still get a hold of all my other specialists during this time. He was doing my injections, and hadn't told my GP what I was having or anything, so i was 4 weeks late having my 4th injection whilst my GP tried to get the information from the hospital I was being seen at.

Thankfully my GP didn't think I was being dramatic 3 weeks ago, when I was crying with stress over not being told what was next with my treatment, and used the new system they have to get me an appointment with a brand new gynae, who wants to do a laparoscopy.

Nikkinix profile image
Nikkinix

i been told if i try for new consultant. ill be put to bottom of list it could take 1year to be seen.

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