Post surgery symptoms worse??

[LVW22]

Hi all,

I really hope this is all in my head but I’m sure my symptoms have been worst since my surgery at the end of January 😞 in particular I’ve noticed worst bowel symptoms (going to the loo a lot and cramping) and nausea.

I feel so fed up as I thought that excision surgery was meant to give the most relief. I know endo is worst with stress and I have had a pretty stressful time of it lately (and obviously more recently) but surely they couldn’t be this bad!?

ANY help or advice would be greatly appreciated.

Hope you’re all keeping safe and well

Lisa x

[Linley]

A phone consultation with your GP would put your mind at rest and hopefully lower your anxiety levels in these difficult times. Keep safe

[LVW22 in reply to Linley]

Thank you. I’ll give that a go. Last time I asked they still hadn’t received my hospital notes but they might be able to suggest something x

[Peachii]

Hi,

I'm so sorry to hear this. Def listen to Linley and talk to your gp to try and relieve some stress.

I had my surgery nearly a year ago (beginning of May) and found my pain was worse after as well. The gyne also hasn't bothered looking into potential bowl endo or anywhere else other than pelvic area. I was recently on zoladex and found that helped the endo symptoms, but the bone pain as a side effect was unbareable at times. So I found it was just swapping one pain for another.

Do you take pain meds? I find mefanamic acid and codeine to help take off the edge when it's severe, but I understand its not ideal for long term.

Hope you get answers soon xox

[LVW22 in reply to Peachii]

The pain is manageable with codeine, it’s more the sickness and bowel issues. If we weren’t on lockdown I wouldn’t be able to go out anyway as when it hits I’m housebound 😫

[Peachii in reply to LVW22]

Peppermint tea and green tea are my best friend when I get trapped wind/ibs related pains. Maybe go to the pharmacy/gp and see if they've got anything that'll help ease the symptoms while you wait for a specialist

[Stacey85 in reply to Peachii]

Hi Peachii,

I'm being noisy here. How do you know the gyne didn't bother to look outside your pelvic area?

I'm really worried that has happened to me and they have missed endo affecting my bowel.

[Peachii in reply to Stacey85]

Hello,

Be as nosy as you like, happy to help.

Doesn't say anything on my notes, I believe they have to write everywhere they investigated for legal reasons on your notes. They themselves said they only looked at my pelvic area and ovaries. Also I believe they need a bowl/bladder specialist with them if they're investigating those areas. From my knowledge most people have separate surgeries to investigate bowl/bladder endo.

I think you have to really push to get it investigated tho as they have to get a specialist in etc.

Hope that helps.

[Moon_maiden]

Hi

Fully empathise with you at present. My symptoms have got steadily worse since December and lap/treatment beginning Feb hasn’t done much. Just been shopping, now lying down with wheat bags.

Definitely speak to GP, I had blood test the other week for coeliac, but I think that’s come back negative. Gynaecologist thinks deeper endo and started Zoladex to see if that works. It’s worth persevering and it’s highly unlikely it’s in your head, don’t let doctors tell you that either.

Hope you get it sorted.