Hello,
I was diagnosed at the start of this year after years of symptoms.
I am on a waiting list for surgery. I am currently on back to back Microgynon but my symptoms have suddenly got much worse. I don't know who I'm supposed to contact about this? My GP? I think there is an endo nurse at my local hospital. Or do I just get use to it and wait until surgery which might be in March/April?
Hope you are all having an ok day
Thank you
When I saw the gynea consultant they mentioned the mini pill, the merina coil too. I think combined pills help but not as much as progesterone only contraception. You could speak to your gp and try to hurry your referral up if symptoms are bad? From my experience gps do not know a thing about endometriosis medication. One specifically said to me ‘I don’t know a thing about that medication, go back to the hospital’….
Oh that is not good. The pharmacist at my doctors was great with prescribing stronger pain relief but not sure what they are like with hormonal treatments.I will contact my GP thank you. Like you say my they may consider earlier surgery if its bad or better treatment might be suggested and hopefully ease things.
Thank you again
Hi, I would definitely co tact your GP who can then ask a question to your specialist. Or you can contact the team via email hopefully.
Don't wait until surgery as who knows when that might be in reality. Don't suffer while you wait.
please contact both your Endo specialist nurse at your local hospital, they will guide your GP as to the correct hormonal pills to prescribe.
Good luck honey. Xx
I'd contact both if you can , go and see gp and ring gynacology or whoever has booked you onto surgery waiting list. There'll be numbers on top of appointment letters you might have had in past
I agree to contact the endo nurse at the hospital. You definitely don’t have to just wait until your surgery, there are medications you can take such as deinogest and you could be taking as someone said the mini pill/progesterone only contraceptive instead. Do also consider life style and nutrition changes as they can be really helpful in managing symptoms. I recently went through a patch of things being much worse and managed to control it with these changes. Consistency and patience though with that as it’s not an over night thing. Good luck x
1) Discuss with GP and ask them to expedite your appointment.
2) Ring Gyne’s Secretary. Go to main hospital switchboard and say name of Gynecologist and ask for their Secretary. Then you can ask if there’s an Endo nurse working with your Gynecologist and get contact details or ask them to contact you. Mine is very helpful with suggestions and resources.
I think option 2 is the most sensible, bearing in mind how awful the lists are.
Hope that helps. Sorry it’s so very rough and scary for you 🫶🏻💛
A thought, if they say have a low FODMAP diet, don’t panic. Google up Field Doctor meals and they come frozen and are very good and healthy. They have offers on, use that. They’re pricey but worth not following recipes from a book and the stress of shopping and making it all. Avoids food anxiety. This actually helped me. my particular case was tricky as I had Crohn’s disease, so not helpful to you. It’s worth a try. Besides other medication or a Mirena coil, this could help you.
You’re not alone in all this, it feels lonely but we are here 💪🏻💛🥇
Do infections cause endo flare / worsening endo? 
Diaphragm symptoms?
Sciatic endo symptoms & waiting for surgery
At what point do you contact PALS? 
