I need some Advice! : Hi I’m 19 and had my... - Endometriosis UK

Endometriosis UK

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I need some Advice!

Alicelily profile image
4 Replies

Hi I’m 19 and had my First Laparoscopy after 4 years of lots of Trouble with my Cycle. My main Symptoms are

- upset stomach (IBS)

- fatigue

- pain during and After sex

- heavy periods with sometimes large Clots ( sorry if TMI)

And intense Pain leading up to my Period.

Including 3 trips to A&E for said Pain.

I’ve had Internal Ultrasounds and Examinations too.

After the laparoscopy was Suggested I did Lots and lots of Research into Endo and was Convinced that I had it especially as my Symptoms Correlate directly with it.

When I was told that they didn’t find anything it was almost bittersweet, because of Course Nobody wants Endo, but this Feeling of unknown has just Got worse. I think what’s worse is that because I suffer with a mental health condition I’ve now been told that it’s basically in my head

I can’t sleep because I have such a fear of my future in terms of Fertility (due to painful sex) I’m also struggling with an overwhelming sense of Guilt and Anxiety towards my relationship because there is nothing physical to it. I’m so insecure and feel crappy that my partner has to suffer too.

I know so many people have it so much worse on here and I really commend you all for you Strength. What a horrible and Cruel Disease endometriosis is.

I just wanted so advice on where to go from here.. the option to go private isn’t there because of financial difficulties. I just wanted to know if Anyone on here received a negative Result from there first laparoscopy and if so is it worth me going back to my Doctor?

Thanks in advance

Alice x

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Alicelily
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4 Replies
BetterFlyAway profile image
BetterFlyAway

Hi there, I'm sorry for all the phyical and mental pain you are going through after your Laparoscopy.

I am in the process of waiting for a date for my surgery.

I would like to offer some advice that is helping me on a day to day basis:

- Pilates for endometriosis

- Yoga for bedtime

- hot relaxing baths

- Meditiation for pain relief

- The Head Space app for your mental health condition

- Silver Cloud is another site you can use as part of your mental health as it like therapy and help you to understand how the mind works and the cycles it goes through when in a depressive states of mind.

- A change in diet (i.e lot of green vegetables, cut out red meat because it contains a lot of hormones)

- Cut out diary products

- go Gluten free because that causes a lot of inflammation in the body which is why women with this condition feel pain and bloating in the stomach area.

- Eat more fish

- Drink Camomile and ginger and lemon tea.

_ Applying vicks vapour rub to where you feel the pain. (I know that sounds weird but trust me it really does help relieve the pain especially at night time.

If you have any more questions I have be happy to help! Take care of yourself! :) <3

Alicelily profile image
Alicelily in reply to BetterFlyAway

Thank you so much for your Lengthy response! Really does me a lot. Im currently Receiving treatment for IBS with diet control so I have actually Already cut out a lot of Inflammatory foods like lactose and Gluten! I have noticed small changes but nothing that makes things better. I’ll definitely try the vapour rub! Thanks again xxxx

Gill1977 profile image
Gill1977

Hi Alice- just wondering if your consultant suggested adenomyosis? Might be worth looking into given your symptoms. Xx

Alicelily profile image
Alicelily in reply to Gill1977

Hi, thank you for Responding. They’ve never spoken to me about anything else apart from Endometriosis. I will have a little read up now as I’ve never really researched that myself! Xx

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