Hi everyone - I’m hoping for some advice /positive stories of getting pregnant with endometriosis.
At the end of last year I was diagnosed via laproscopy with stage 4 endo, as well as a very large fibroid. Although I’ve always had painful periods, particularly in my teens, I wasn’t expecting my endo would be as extensive as it is and it came as quite a shock. I was advised by the consultant that I try for a baby immediately as the likelihood is I’ll need a hysterectomy in the future. She did say that my fallopian tubes are clear at the moment and my ovaries are normal and endo free, which is good news. However she called me ‘gynaecologically complex’ and said I might struggle to conceive (she also told me to cheer up ‘because it’s not as if you’ve got cancer’ which is correct but not entirely helpful when you’re being told you’ll need your reproductive organs removed at 32 years old!).
My partner and I started trying straight after my diagnosis. I hadn’t been on the pill for a year at that point, and was taking pre pregnancy vitamins as we’d been planning to start trying early 2020 anyway. It’s only been four months but I’m already feeling disheartened and exhausted about the whole thing. Each month is incredibly disappointing, on top of painful. I think I’d probably be much more relaxed about it if I didn’t have the threat of endo getting worse each month hanging over me and my chance of conceiving naturally slipping away.
I was hoping some of you might have some positive stories of getting pregnant with endometriosis. I might have a very long journey ahead of me and it can feel very lonely when your trying for a baby and it’s not happening. I’d love something to keep my hopes up as I press on with baby making. Thank you x
I am nearly two years to trying diagnosed with severe endo in January and hydrosalphinx on right side ..... I have been recommended ivf is my best chance
i’ve just been told i have R Hydrosalpinx alongside my long standing endo. I’ve been told either chlomid for a bit or IVF but he doesn’t want to see me for 6 weeks! so i feel lost
I’d like to think not too much will change in six weeks. I don’t know a huge amount but I don’t think endo grows that’s fast. I hope you get some answers soon. I know how lonely and how lost feeling ttc with endo can be x
Thanks for your reply. I phoned a private clinic today and managed to get an appnt this evening. I’ve been referred to the ivf and endo clinic and will have new bloods done. I couldn’t carry on with my anxiety and all the questions i had
Amazing - that’s so quick. The constant anxiety is the worst. Keeping everything crossed for you x
Thanks. We’re on the waiting list for a fertility clinic now. I think it might be our only chance too x