Results of MRI and next step - Endometriosis UK

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Results of MRI and next step

Billyfluffy profile image
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Hi everyone hope you are all well . just to update on MRI suffered with Endo 12 years ago had total hysterectomy on HRT stated having pains etc. Had MRI no deep endo found On bowel or bladder however he has said and suspects that as from my internal exam that endo and adhesions could be present in the pelvic area. Also my bladder clear however suffering now with a prolapse the pelvic floor wall nearly gone and bladder is detached.he has referred me to two surgeons . He has said that I need bladder sorting immediately and a lap

. So he has completed the letter to the Doctors to be referred . It is now a waiting game taking voltoral suppositories great for pain relief xx

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Billyfluffy profile image
Billyfluffy
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Lindle profile image
Lindle

Hi - as you have been diagnosed with suspected deep endo you must be referred to a specialist endo centre in accordance with NICE guidelines:

nice.org.uk/guidance/ng73/r...

BBBOA profile image
BBBOA

Well that's a complete nightmare! I had total hysterectomy 3 years ago and waiting to go on for a laparoscopy as have lots of pelvic pain and suspected adhesions and/or more endometriosis. Nothing prolapsed, but can't have sex as just too painful. Also have what feels like cyclical stuff going on still though not on any hrt and haven't been for a good year. So much for the hysterectomy being the holy grail!!! It's miserable isn't it, but looks like you are on the list to get yourself sorted. Take care!

Billyfluffy profile image
Billyfluffy in reply to BBBOA

Ah thank you for you email sorry to hear your suffering too . Yes waiting now for letter to be written and sent by doctor then see the consultants oh the joys xxxx

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