"HOW ENDOMETRIOSIS IS TACKLED BY THE MEDI... - Endometriosis UK

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"HOW ENDOMETRIOSIS IS TACKLED BY THE MEDICAL COMMUNITY" TIMELINE

StefaniaJW profile image
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THANK YOU FOR GYNAECOLOGIST AND LEADING ENDOMETRIOSIS EXPERT IRIS ORBUCH FOR PUBLISHING HER ENLIGHTENING BOOK, from which this text was extracted. PLEASE READ IT CAREFULLY, especially if you were recently told you "might" have endo or are waiting for a diagnostic laparoscopy.

The current paradigm in endometriosis assumes endometriosis is chronic, that it will always return, and worse... it’s managed with denial, delays, drugs (that don’t eliminate disease or prevent progression), castration (chemical,or surgical) and ineffective ablation (burning the top of the lesion) and/or incomplete (removing some but not all of the disease) surgery.

The reality is that most “recurrence” is actually “persistence”... disease left behind... this paradigm perversely financially incentivizes, diagnostic delay, ineffective drug therapy, and poor quality surgery...

Most importantly, this paradigm steals time, education, career, relationships, fertility, quality of life, physical and psychological (as a consequence) health from people with endometriosis... and by the way, costs society billions and billions ....

The gold standard paradigm, complete excision with an expert, requires more from the system. It requires knowledgeable clinicians with clinical suspicion, early referral to experts, identification and management, and includes EARLY complete excision at a time determined through true shared decision making between knowledgeable, caring, humble clinicians and educated empowered patients and loved ones.

AAGL 2019 “A Holistic Approach to Endometriosis. Evaluating Coexisting Conditions of Endometriosis” Dr. Iris Orbuch.

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StefaniaJW
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Afrohair profile image
Afrohair

It’s true people wait so long it’s awful I’ve got my appointment on Monday after almost 8 months I would have been seen to sooner but I got pregnant and they said the referral would have to start again once I misscarried but now I will need another referral after this one I don’t no why they can’t send you straight to a specialist I guess I didn’t no this until going on this forum because I originally thought an original gynaecologist was the way forward but I’ll probably be waiting again I don’t know if I can do that wait again and might need to go private

StefaniaJW profile image
StefaniaJW in reply to Afrohair

It's so frustrating but I'm so so happy you are pregnant!

Afrohair profile image
Afrohair in reply to StefaniaJW

Not yet but I was

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