Progesterone only mini pill treatment for... - Endometriosis UK

Endometriosis UK

71,050 members52,286 posts

Progesterone only mini pill treatment for endo

Lapqueen profile image
3 Replies

Hi I'm just looking for any other people that have been put on the mini pill for treatment of Endo following a lap.

I've been on it since Feb of this year. I've just started spotting again after three months of nothing. But I can feel the old familiar Endo pains returning.

I was wondering what other people's experiences of this treatment was. I'm terrified it's coming back.

Thanks ☺️

Written by
Lapqueen profile image
Lapqueen
To view profiles and participate in discussions please or .
Read more about...
3 Replies
LH38 profile image
LH38

Hi. I have been on the mini pill Desogestrel for just over a year after stopping zoledex injections.

Once the zoledex wore off I began periods again regardless of taking the mini pill. Less than a year I started to get discomfort and asked to go back into zoledex but they said I'd had the maximum amount of 2yrs. So I have been on a waiting list for a hysterectomy since March this year.

I have been told the mini pill alone is not strong enough and that is why I had breakthrough bleeds etc. I am only now in the familiar desperate pain. Looking for the best options to give the longest gaps between reoccurring endo.

Hopefully yours has not come back xx

budgeroo profile image
budgeroo

I haven't had a lap (so not confirmed Endo) but I was put on Noriday mini pill about 4 months ago. I still have bleeding or spotting over 50% of the time, with mild/moderate pain. Is mini-pill supposed to stop bleeding completely?

It's miles better than when I was on a combined pill (Gedarel) before, which made me bleed pretty much continuously, with worse pain, and other side effects.

My next step is Gynae referral... Been putting it off for a while now

Lapqueen profile image
Lapqueen in reply to budgeroo

I think the mini pill is different for everyone. I spotted and had regular periods for a few months. Then I was coming on every two weeks for a few months and then they just stopped. I had some Endo pain still after my lap last October. But it did go eventually. Just getting some pangs again a year on.

I find the mini pill to have been better for pain management. The progesterone is seriously messing with my mood and hormone balance though. Super tired, tonnes of acne. Unwanted hair growth. Won't ever go on combined again.

Don't put it off though. Need to push for it to be treated and seen. Hope you get seen soon x

You may also like...

Can endo return on progesterone mini pill?

it was all connected. I was put on the progesterone only mini pill just before my laparoscopy and...

Question for anyone on the mini pill or progesterone only pill

I'm a month in after a nightmare 6 months of decapeptyl injections and my bloating/ water retention...

Progesterone only pill experiences

on the pill as I don't get on well with hormones but I just couldn't handle the monthly endo pain...

Hi there progesterone only pill

for too long. Has anyone here any experience of this medication. As I'm very nervous of new...

First period on progesterone only pill

was put on Desogestrel (the progesterone only pill) around 2.5 weeks ago to help 'manage' my endo...