Can recto vaginal endometriosis cause upp... - Endometriosis UK

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Can recto vaginal endometriosis cause upper abdomen pain?

Charts profile image
10 Replies

I had a laparoscopy a few days ago and was convinced they would find diaphragmatic endometriosis but they didn't. They said I have recto vaginal endometriosis and would need a 3 hr operation and will put me on the waiting list. I'm just wondering if the upper abdomen pain could also come from this type of endometriosis. I also get breathless a lot, even just walking up my stairs.

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Charts
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10 Replies
endoqueenie profile image
endoqueenie

Hi! I also have rectovaginal endometriosis and I have the same symptoms!

Charts profile image
Charts in reply to endoqueenie

Are you going to have surgery to remove it?

endoqueenie profile image
endoqueenie in reply to Charts

I had surgery to remove it 2 years ago, symptoms came back after 3 months

Charts profile image
Charts in reply to endoqueenie

Oh that's bad it came back so quick. What was the surgery like? Did u need a stoma bag? I'm debating whether to put this op off until late next year but don't know if that's a good move

endoqueenie profile image
endoqueenie in reply to Charts

Yeah it’s awful, surgery was fine though, no stoma bag needed (they didn’t even tell me that was a possibility!) and I was fine after 2/3 weeks post surgery

Charts profile image
Charts in reply to endoqueenie

Well that's encouraging. Thanks for your replies

endoqueenie profile image
endoqueenie in reply to Charts

Anytime!

StefaniaJW profile image
StefaniaJW

Breathlessness is a common symptom of diaphragmatic endo.

Please make sure whoever performs the surgery on you is a highly skilled excision surgeon with extensive experience. I'm here if you need help researching your surgeon to make sure he's capable or if you need names

Charts profile image
Charts in reply to StefaniaJW

I'm going through the NHS Cardiff heath hospital. I know the one is a endometriosis specialist, so I'm assuming he is capable of doing this ( I hope).

StefaniaJW profile image
StefaniaJW in reply to Charts

Please PM me

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