Stage 4 Endo - on Prostap/Tibolone 2 years - GP says stop due to migraine with aura as this is warning sign of stroke

[MPeabody]

I have been having migraine with aura on and off for a year and only recently went to the doctor about it. He alarmingly told me that this was an early warning sign of stroke and I have been told to stop taking Tibolone. My next Prostap injection is due next week. My mood is very low because of not taking HRT any more. I don't look forward to getting my cycle back but I am looking forward to not feeling so depressed (Prostap induced). Just wondering how long it takes for Prostap to wear off.

God knows what plan B is. I don't want surgery as this will involve bowel resection as my bowel and uterus are adhered to one another and the endo has pretty much destroyed them.

[7777melg]

Hi , sorry to hear you are in pain ,

Very interesting to hear about Tibolone I have been on it 6 weeks due having total hysterectomy and the doctor said was the only HRT I could have due Endometriosis. Cant have any other HRT for a year because of estrogen can bring endo. I have been getting very bad headache. One day I had a headache and could not even see it was that bad and lasted 3 days . I was also on prostap prior to my OP for 18 months that also gave me headaches and joint pain I hated prostap injections. I am going back to doctor about Tibolone now you have shared this thank you for sharing. Hope you find something to help you

[MPeabody in reply to 7777melg]

Thanks for your response. You sound to have really been through it. Definitely a good plan to tell your doctor about the headaches - they sound horrific. Apart from my migraines, I used to refer to Tibolone as my 'happy pill' as it definitely helped with my Prostap depression. I see my consultant 23rd Sept and I am hoping he has a plan B. This might be hysterectomy and bowel resection, but I really wanted to avoid that and stay on Prostap/Tibolone until natural menopause.

Let me know how you get on and good luck.

[E-ZEE]

I have no idea about tibolone,but I took porstap for 6 months and it drove me so crazy ,migranes,depression,sleeping disorder ,night sweats etc.It maximum limit is 6 month ,it is too risky if u go over ,it has long lasting side effects like bone weaknesses,blurred eyes etc...hope u find some better solution.