Hi everybody
I'm currently awaiting a gynaecology appointment in October after suffering for over half of my life. Feeling particularly frustrated today. Bloating is one of my most persistent symptoms, alongside pain, and after having been so distended for 3 days and in pain, feeling nauseous and being sick, I just felt like I had to do something. Got an appointment at urgent care to be told it sounds like IBS, people with endometriosis don't bloat and theres nothing that can be done for me as mebeverine and buscopan dont work and codeine would constipate me (which I don't want). I was in there for less than 5 minutes.
I'm severely anaemic, have just had to have my fourth set of iron infusions and I'm under gastro again after previously having a colonoscopy and endoscopy (clear beyond a hiatus hernia). I've now got to go back for the same tests because I'm so anaemic again and the tests were in 2014. They don't really seem to actually be concerned about my other symptoms or how they affect my life.
I bloat for minutes/hours/days/weeks at a time (more recently, days and weeks seem.to be more common). I get a lot of pain and typical IBS symptoms between constipation/diarrhoea. The only time these symptoms have ever disappeared was during pregnancy and when I wasnt menstruating whilst breastfeeding. As soon as I started my periods again, so did the symptoms.
It took us almost 2 years to conceive but I didn't worry about that as I thought it was coming off the injection.
All my symptoms mirror what I have read about endometriosis except I don't have particularly heavy periods- although they can be and do vary vastly month to month. My symptoms are also worse the week/10 days before, during and after my period.
Any advice? Comments?
Really frustrated and fed up.
Thanks.