Pain Episodes: I need help! I had an... - Endometriosis UK

Endometriosis UK

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Pain Episodes

SweetpeaDonna profile image
3 Replies

I need help!

I had an operation in March and predominantly from my notes Endo was all on my left side.

I’m currently on Millinette which I take for three months and have a break but I haven’t bled since January.

Last night I had 2 pain episodes that felt like contractions. It was all on my right side which I had never experienced before. I was violently sick with the second pain episode. I took pain meds and anti sickness and went to bed.

I’ve woke with a dull stabbing pain in my groin.

Could Endo have penetrated my right side now?

Thanks

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SweetpeaDonna profile image
SweetpeaDonna
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3 Replies
Brambledoggy profile image
Brambledoggy

You poor thing. How are you feeling today? Who knows if your endo has spread. It’s very possible, because the pill only suppresses the pain not the spread of endo lesions. Kind of like a mask. I’m wondering exactly what kind of surgery you had, where and by whom? Was it lasered off? Or ablated? If it wasn’t dealt with correctly some may have been left behind or not spotted. You need help again. You need to go to your GP and explain exactly how you’re feeling. Don’t be afraid to push hard to get referred to a specialist endometriosis centre locally to you. Let me know how you are.

SweetpeaDonna profile image
SweetpeaDonna in reply to Brambledoggy

Thanks for replying lovely.

I had Excision surgery. I’ve had a copy of my hospital notes and the Endo was predominantly on my left side. Left uteroscaral ligament overlying the left urethra. Endo in the right pouch of Douglas with sacculation and nodularity. Tubes, ovaries and uterus normal.

Since this pain episode I’ve had a lot of dull pain. Feels like a trapped nerve if I move too quickly. Also I get a pulling feeling on my right side. It’s asthough I’m moving but I’m leaving my tummy behind.

ourmolly profile image
ourmolly

This could well be endo. See your GP, and hopefully Consultant to try and get your issue sorted out.

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