Did your first Laparoscopy come back NO ENDO? if yes! did you get a second opinion and it turned out you do in fact have endo?

[sookaso]

Hi Ladies, I was just wondering how many of you had laparoscopy surgery and were told 'No endo found' and 'Not a gynecologic problem'? and then took your investigation further and either had a second or third laparoscopy done or took your photographs to a specialist and eventually got diagnosed? please share your story.

[SeenGreen]

Still waiting for lap to be re booked,bbit would be very interested to hear this. Hope you get some replies soon x

[Nina8921]

Hello, I'm afraid I cannot help you other then to let you know you are not alone. I had a Laparoscopy and hysteroscopy a week and a half ago to look for endometriosis/other possible causes for my problems. All I've been told is that they didnt find any endo but I know nothing else until I go back to see my consultant. If I'm honest my consultant has been very good but I am worried myself as too what happens now and I'm worried the answer will be nothing.

My symptoms have been going on now for just over 2 years, a lot less then others so I thanks myself lucky. I have irregular bleeding between periods that can last a day or even up to 7 days, I often lose vaginal blood when passing a bowel movement, my periods are painful but I wouldn't say debilitating, pelvic and hip pain but my worse problem in pain and bleeding during and after intercourse. All of my symptoms seem to have no rhyme or reason to them and will come and go as they please. I am now single and I am trying to date but this feels like a big black cloud above my head. Bleeding during intercourse can be embarrassing at the best of times and sometimes the bleeding can be very heavy during intercourse but its more that it's hard to explain this to someone I'm one just getting to know but even more so because I cant even tell them what's wrong with me. I hope that we both get some answers as its awful to know somethings wrong but then find yourself questioning if it's in your head. I'm sorry this hasn't answered any questions but I hope it helps you to not feel alone in your situation and to know there others out here experiencing the same as you.

[Lofty1589]

I’m currently 3 weeks post op and wasn’t spoken to after my op at all - I have to wait until 15th August for my follow up. The discharge letter said that other than evidence of Adenomyosis, my pelvis is completely clear yet I have so many symptoms of Endo, that don’t correlate with Adeno. I’m still in so much pain (elevated by the op and everything being moved around (plus I now have infected stitches in my belly button!)) which even Tramadol isn’t dulling down enough and I suppose my only blessing is that now I am on the progesterone only pill, I don’t have to deal with breaks on my pill and the agony and misery it brings when it comes.

Hopefully there are some answers I can get in my follow up but being told there is no endo by my discharge letter isn’t enough - not having endo is bad as now it seems there is no explanation for all my horrible symptoms

[sookaso]

Hey ladies A wee update

I booked an appointment on Tuesday to see a privet consultant that I found, he specializes in endo and I saw him last night. The best decision I have made in the past year and a half. It wasn't cheap but worth it. He was so kind and believed every word I said. He actually listened and helped me see that it is not just in my head. And he has no doubts that this is a gynaecologist problem. I had 30 minutes and he asked all the right questions and sympathized with my story. So now, he's going to be writing to my GP and setting up a plan for me to move forward. He was so sympathetic and actually never palmed me off. I feel a slight weight has been lifted. He doesn't disagree with my thoughts on my first lap. He said there quick well could be a chance that my first surgery was wrong and it does sound like I have endometriosis but he was conflicted as he also thinks I could have chronic pelvic pain syndrome. He is going to do everything he can to help me and direct me on to the correct path and said he can help me get to a place of managing my pain even if we never get to the bottom of the reason for that pain. So he's giving me a few weeks to think out what he has offered plan wise;

1st pain relief/management clinic.

2nd MRI Scan

3rd a second laparoscopy and this time with a biopsy taken.

Still no solid answers or diagnosis. But I feel this is a more positive look in the right direction. To have him listen and take everything I said seriously and not dismiss my thoughts on my body has just lifted my spirits again. So please don't give up. Keep fighting and pushing to be heard.