Hi, I had surgery almost 3 months ago and it went very well - all clear of endo which is great! - but I still have the same abdominal pain and lower back pain since before surgery albeit a bit less often than before. It’s definitely more bearable now but when it hits it still affects me significantly and affects my walking/sleeping and sometimes stops me working. I had a phone consultation with a specialist recently (I didn’t get a post-op appointment at all so I had to call the hospital and chase up and I asked to come and see the consultant so someone could explain what happened in the surgery and discuss pain management going forward) and they then sent a letter that said ‘not much endometriosis was found’ during the lap, only a small spot which they cauterised and scarring, and they said that even when there is no disease some women may perceive pain. They also suggested that I take Amitriptyline and come into the next clinic session.
I feel so grateful that the consultant is taking me seriously but I do also now feel like I’m wasting their time as technically there is no disease in me any more, especially when they said I was just perceiving the pain, it made me feel like it was all in my head and that I don’t need to take up their time and resources.
I thought I would feel so much better after surgery, and now I feel like I’m being so demanding but I just want someone to sit down and explain what everything means.
Has anyone else had this experience of pain after excision/cauterisation? And does anyone have any advice about Amitriptyline and side-effects? I’ve taken anti-depressants before (sertraline) and it was a very unpleasant experience so I’m not sure whether to try this or just grin and bear the pain.
Thanks!