So I had my first laparoscopy today, I'm just waiting to be discharged.. they found no endo.
I feel so disappointment and angry, I know I am LUCKY beyond lucky not to have the horrible disease but HOW AND WHY is there no explanation for 6 years of crippling agonising pain resulting in me in a&e begging for pain relief, admitted to hospital...
They gave me the images even though they weren't meant to but I've just moved to 3 hours away from the hospital ... so consultant said was fine to photocopy the images...
what should I do next? They said pelvic pain clinic... I want MRI or CT, the pain is NOT in my head and I've just had a laparoscopy and Anaesthetic for nothing?!?!
I am grateful I don't have the condition but just so angry there's no answer for my pain!!!
I am sure they have checked and found you haven't got this but I just wondered if they mentioned adenomyosis which can be difficult to diagnose? Mine didn't show up on an ultrasound, they just noticed that my uterus was enlarged and looked like it had adeno when doing a lap. This can cause severe pain and occur without endometriosis present.
They said everything normal.. no mention of adenonyosis they just said go to pelvic pain clinic and off you go basically... and that I have normal tubes and ovaries etc apart from PCOS but that doesn't cause pain
You might want to look into adeno if the pelvic pain clinic is unable to help you. I think it is possibly sometimes missed on a lap but I am not an expert.
I'm going to be seeing the GP where I've relocated to and I'm going to ask the next steps. I have my detailed notes and images from today's laparoscopy so they should be able to help as I don't want more ops, I am going to research into adeno though, thank you! xx