A small grumble: So today I am in a lot of... - Endometriosis UK

Endometriosis UK

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A small grumble

tracybee profile image
4 Replies

So today I am in a lot of pain, it feels like every bit of me is in pain and feeling sick and a bit fed up.

I am waiting for surgery to look for endo although they are pretty certain that's part of my problems but i am also having a hysterectomy as I have adeno and some pretty massive fibroids and they also think I have endo on the back of an old abdominal scar which is attached to my bowel. I was referred for surgery on the 3rd Jan and they said be a 2 to 3 months wait, last month they said it would probably be the last week in May, I still hadn't heard anuthing so tang again today and the doctor who is doing my surgery is only doing emergency surgery in May so all his cases have been pushed back so it's going to be probably July now before my surgery.

Sorry for the long rant, I just feel a bit sorry for myself today.

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tracybee
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4 Replies
EndoJaz profile image
EndoJaz

It's awful..I hope they sort you out soon..don't think they realise how our lives are literally on hold waiting for these ops. So unfair.

tracybee profile image
tracybee in reply to EndoJaz

Thats true. When I rang they asked if I had any plans for holidays or times to avoid, I said no as I cant plan anything due to being too ill and waiting for the appointment date.

Sazzy_K profile image
Sazzy_K

I’m the same - in January said I would wait 2 months.

Called docs yesterday and just said you are on the waiting list and need to be patient. Annoying as I have had pre-op and that is set to run out and will have to be repeated!

So tempted to go private but would be a massive financial sacrifice as don’t have medical cover - but my life feels like it’s on pause :(

tracybee profile image
tracybee in reply to Sazzy_K

Yep, I had my pre OP in Jan so mine is well out I think. It is so annoying and like you say life is on hold.

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