Endometrioma cysts on both ovaries - Endometriosis UK

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Endometrioma cysts on both ovaries

GreenwichGirl profile image
23 Replies

I was hoping someone could help as I have read conflicting information and am now in a bit of a state. I have just been diagnosed with a Endometrioma on both ovaries, they are measuring quite small I think, one 25.1 mm and the other 22.6. I am booked in to get them removed in a weeks time but I read somewhere that if both ovaries under go surgery then I have high chance of damage to my ovarian reserve. I was wondering if there was a chance that they could disappear? Really don’t know what to do and have no one to talk to.

23 Replies
Reachforthestars profile image
Reachforthestars

Try not to worry, easier said than done I know 😊

I had bilateral ovarian endometriomas, had them removed and stage 4 endo treated, that was back in 2011. I have a 4 year old son since then!

My cysts were a fair size, 6cm and 11cm. All went well and I conceived no problems.xx

GreenwichGirl profile image
GreenwichGirl in reply to Reachforthestars

Thank you for your positive message. I have always known I have had Endometriomas but just didn’t realise it could spread to the ovaries. Do you know how they removed them and did you go to a special endo clinic? Xx

Reachforthestars profile image
Reachforthestars in reply to GreenwichGirl

My local NHS hospital has been accredited with being an endo specialist centre. I couldn't tell you how they removed them but pretty sure the endo was removed sensitively in order for me to conceive.

xx

GreenwichGirl profile image
GreenwichGirl in reply to Reachforthestars

Ok thank you x

FingersXssed83 profile image
FingersXssed83 in reply to Reachforthestars

Hiya, do you mind me asking your age, if you conceived naturally and how long you were trying for? We’ve been TTC 2 years, 3 IVFs and I’ve just been told I have a 3cm endometrioma. Also I’m 35, 36 soon and still no BFP! I’m really losing hope :/ x x

Reachforthestars profile image
Reachforthestars in reply to FingersXssed83

Of course 😊 I was 33 when I conceived and we were lucky to have succeeded first month of trying but I think that's because I really wasn't expecting to fall pregnant. There was no pressure. I have actually been trying to conceive my second for over two years but it's not happening and I'm sure it's because I've put pressure on myself this time round.xx

L2213 profile image
L2213

Sorry to hear about your recent diagnosis, I know it’s a lot to take in and hope you are doing ok. I’ve also had endometriomas removed from both ovaries (one was 10cm the other was only 1cm) We’ve been struggling to conceive for almost 2 years and are about to start ivf but my ovarian reserve actually went up slightly after my surgery (I’d also read online that it could damage this so was worried beforehand) but was pleasantly surprised to find it had gone up. I definitely felt better after the surgery and felt reassured that the consultant who did it was a fertility specialist. Good luck with your surgery x

GreenwichGirl profile image
GreenwichGirl in reply to L2213

Thank you for your message. I have been lucky to go private but I am thinking I might cancel and go via the NHS and go under a endo specialist but I need to make my mind up in the next few days x

GreenwichGirl profile image
GreenwichGirl in reply to GreenwichGirl

Sorry I was meant to wish you all the best on your IVF journey xx

L2213 profile image
L2213 in reply to GreenwichGirl

Thank you, good luck with your surgery x

wanwood profile image
wanwood in reply to L2213

Very encouraging to hear that your ovarian reserve went up slightly rather than down! haven’t had my AMH tested again after surgery in case it has got worse and the answer puts me below the threshold for IVF in my area, so it’s very much been on my mind. x

L2213 profile image
L2213 in reply to wanwood

I know, I was really surprised as had been really worried about this. Was nice to finally get some good news for a change! Fingers crossed yours hasn’t gone down either x

wanwood profile image
wanwood in reply to L2213

Thank you, best wishes for you too! x

V-ssd profile image
V-ssd

I had endometrioma in my ovary ( once 46 mm then after progestron only pill it was 36 mm) and i read here that someone has used yarrow tea and it was helpful then I read benefits in google, and for 2 months I drank everyday bio yarrow tea and when I was for ct scan there was no cyst. If you find it, I suggest you to try it.

GreenwichGirl profile image
GreenwichGirl in reply to V-ssd

Thank you for this advise, I have a long list of teas that have been suggested but this sounds promising, off to my local health store today to find some . I went to a Chinese herbalist this week who said she thinks she could clear it within three months with acupuncture, herbs and supplements but it would cost me £2800.. i have booked in somewhere else for a second opinion and to see if there is a more affordable way I can do it.

StefaniaJW profile image
StefaniaJW

My friend had a 10-CM ovarian chocolate (endo) cyst removed and went home with her reserve and ovary. She did get excision performed at the best endo center in the country though. I would suggest you seek a truly experienced and capable endo excision surgeon, otherwise yes, they might damage your ovaries.

GreenwichGirl profile image
GreenwichGirl in reply to StefaniaJW

Thank you, I am thinking about cancelling my surgery and go via the NHS as I don’t think my insurance covers any of the private endo centres x

StefaniaJW profile image
StefaniaJW in reply to GreenwichGirl

I had no idea you needed insurance in the UK. Anyway you can get an amazing endo surgeon even through the NHS. Have you researched a good one?

3caramel7 profile image
3caramel7 in reply to StefaniaJW

No you don't. Some people decide to take out extra private health care mainly just due to time. Most of the time your private consultant will also work in the NHS. Having private health insurance will ensure that you will be able to see the consultant next week for an hour as opposed to going on the waiting list and maybe only having 15 minutes.

StefaniaJW profile image
StefaniaJW in reply to 3caramel7

That sound so shitty. I'm so sorry your system is so messed up :(

3caramel7 profile image
3caramel7 in reply to StefaniaJW

No its fine.

I am having chest pain problems. I saw my GP within a hour. An ambulance was called and I went to A and E and was seen straight away in Emergency. All for free.

You tend to get seen in terms of urgency and how sick you are.

In the UK , if you go private, it tends to be the same Doctor Who you would see on the NHS for free. In the UK there has been a lot of scandals in the private sector because some Doctors do not have the same experience as their NHS counterparts. So going private is not always the best idea. I've gone private and payed cash. IT is one of the best things I've ever done but that is because my issues are not straight forward. I found the Consultant through reading medical papers but because he also works in the NHS, I now see him for free. I am in a position that I am a Scientist who has worked in the NHS.

Unfortunately chronic diseases like Endometriosis have not been recognised and is not sexy enough to attract the funding needed for research. Thank goodness we are online now. When I got diagnosed in the last century there was nothing in terms of support or advice.

Hi, I think under 5cm then yes they can go naturally. However I would seek advice from 'Heal Endometriosis naturally' and try her protocol for 3 months before surgery to give them a good chance to go. I am surprised they are operating. Mine are 4cm, now 5cm and they were still not going to operate. Are you going private for op?

GreenwichGirl profile image
GreenwichGirl in reply to

Yes I am but I am thinking I will go down the NHS route instead or postpone it for a few month x

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