Hi, I could really do with some reassuring. My consultant sent me for a pelvis scan a couple of weeks ago. My health is poor I suffer from fibromyalgia, phsoritic arthritus, spondylitis of the spine & under active thyroid. I can barely walk due to pain in my spine, he wanted to check the severity of my arthritis so that was the reason for the scan. He ran me last week with the results, this alarmed me as you Rarely get a phone call off them. He said there are cysts on each of my ovaries one 15cm and other 10cm, he also said the discs in my lower spine were not good, however the report of the results say my ovaries have to be seen first, so he has referred me for an emergency appointment with gyne. I have read that cysts are very common, but I am so worried. Has anyone experienced this problem and what treatment was required.
MRI shows large ovaries cysts: Hi, I could... - Endometriosis UK
Hi I'm really sorry that you have had this news must be quite a shock for you!
Your back pain could be caused by your cysts as well as your athritis as they are very big. Have they told you what kind of cyst they are? I had a 13 cm endometomia a couple of yrs ago.
Please make sure you have a good gynae and that they remove both cysts and don't just drain them.
I'm waiting for my appointment to arrive, I have no idea what sort of cysts I have. I have injections every Friday for my arthritis, when I was there last Friday I explained to the nurse my worries as I had only had the phone call off my consultant a few days earlier when he rang I was shocked so really didn't take in in, so my nurse looked at my records she found the letter sent to my consultant for the results of MRI scan, it said I had the cysts on each ovaries and the sizes, she told me not to worry, and that an appointment will arrive soon. Im still waiting for my appointment and still worried. Did you have your cysts removed? Thank you so much for replying and your advice x
Hi yes I had my endometromia removed but unfortunately it was an emergency op and they didn't remove it properly and unforunately my endo spread and the cyst refilled and I had amother op to remove the cyst completely and to excise all. My endo at a specilaist centre. try and find out what kind they are and find out what kind of cysts they are. Xxx
All of the conditions you list are autoimmune conditions. aarda.org/autoimmune-inform...
I have been reading up on autoimmunity and how to treat it with diet instead of drugs but I am no expert. Try researching
- Amy Myers amymyersmd.com/myblog/
- Dr. Axe draxe.com/4-steps-to-heal-l...
- Frank Lipman drfranklipman.com/wp-conten...
and many others.
Modern medicine is not very good at treating the 'whole' person and you could potentially end up seeing different doctors each specialising in their little bit prescribing something for a symptom but not getting to the root of the problem. Still useful for diagnosis etc. but I think you need to take a more strategic approach and address the underlying cause.
There are different types of ovarian cysts and they can sometimes be quite large. They can be removed by surgery fairly easily but they need to be cut out and not drained to reduce the chance of recurrence. It is a scary thing to find out especially as you have a lot of other health issues to deal with. Many women on this forum including me have cysts on our ovaries.
Good luck with your appointment. x
Thank you, you are so right, I think that is why I didn't go to my gp. My periods have been irregular for sometime now. I also have lots of side effects from my medication it all makes sense now. My methotrexate injections can make me sick, a couple of weeks ago prior to scan whilst I was being sick in the toilet I had no control of my bladder and was peeing whilst being sick, even though prior to being sick I'd just emptied my bladder, I'm not talking a dribble either. I've also had terrible period pains, I didn't go to my gp as I suppose was embarrassed and also there's so much going on health wise I never get a straight answer. I will look at the links you have sent me, once again thanks 😊 xx
Have a good look around the Endo Uk charity website and all their pdf guides to see if your symptoms match endo endometriosis-uk.org
If you have endo you would be better off being seen by an endo specialist. See how your gynae appointment goes and then you can decide what to do next. But if endo is suspected I would advise you to choose an accredited endo specialist here bsge.org.uk/ec-BSGE-accredi... and tell your GP who you want to be referred to.
I only know a bit about endometriosis cysts which are called endometrioma. Other cysts I often hear mentioned are 'functional' cysts or cysts due to polycystic ovary syndrome (PCOS). But your other period issues add up to being suspiciously like endo in my view. Bear in mind it could be something else.
It does sound to me as though you need to really get back to basics and research autoimmune diet/protocols and anti-inflammatory diet. By all means include modern medicine in your protocol but in my view it is not the only answer and is very poor at dealing with autoimmunity. Look up 'leaky gut' as well. I am reading that if you have an autoimmune condition that you most likely have a leaky gut. This needs to be repaired before you can move forward.
Good luck with everything. x
Thanks Alice! I would also point out that a couple of the sites I mentioned in the post above are run by people who are also trained in modern medicine one of whom suffered an autoimmune condition and felt let down by all her medical training when trying to overcome it. She expanded her view to include her whole lifestyle including diet, environment etc. and managed to address her health issues.
Good luck with everything. x
Hi. I had a 10x12 endometrioma removed just before Christmas...... I can tell you it was causing me excruciating pain so these cysts are no doubt causing you a lot of pain on top of everything else. There are lots of different types of cysts so I guess they need to establish what they are. If it is an endo cyst, just insure they excise and remove it if you have surgery.... Don't get it drained! I made this mistake and it just re-filled and grew bigger after my first surgery.
I also have chronic fatigue syndrome (ME) so my health is rubbish too. But since the surgery at least some of my pain and problems have been relieved.
Wishing you good luck. Let us know how you get on.
Oh no... That is rubbish timing. I was supposed to have surgery at the beginning of december, but it got cancelled on the day (I had been at the hospital from 11am , nil by mouth, and they cancelled at 5pm!) totally cried as I was in such a state with the pain. Got rescheduled for the 20th and I didn't leave hospital until the 23rd (had a drain for two days and took a few days to get mobile) so all my christmas plans were ruined! But getting the cysts removed took priority. Good luck hun x
Well I've been to appointment, I've had the CA 125 blood test, they will ring me tomorrow with the reading. He explained that they were very large, he's doing blood and in to go for an ultra sound in 2 weeks, he said he cannot rule cancer out until we have results of blood and ultra sound results back, he did say even if the markers are raised it does not mean it is cancer, however though if the number is around 200 mark it would mean it is. He said normal is between 10-12 so we will see when it comes back tomorrow. I explained about my holiday he say go and enjoy it, he wants ultra sound done on 14th then he says that gives us time to plan what treatment is best for when I return. He was lovely. So I will let you know tomorrow what the reading is 😊 x
Hi.... Im glad to hear the bloods came back in within normal range and the cysts are not cancerous. That's a huge relief. I'm also glad you are able to go on holiday after all.... Hopefully you won't have any more pain or troubles whilst away. However, I would be pushing for surgery once you are back as the sooner the cysts are gone, the better you will no doubt feel. I'm sure they won't make you wait too long as there is a chance they could grow bigger and cause more pain.
I will keep an eye out on posts to see how you are doing. Hope the scan goes ok. Good luck and enjoy your hols x
Hi flowerpots I went for an ultrasound on the morning of 14th April 2 days before my holiday to Florida I thenwent back in the afternoon for results where I saw a junior member of staff he said they are going to remove the cysts he is unsure what will be removed as they wont know the total damage u till they open me he said operation would be around 8-12 weeks which I thought that's ok, only for my daughter to inform me while on holiday the operation is going to be on Thursday 6th may, I flew back from Florida on Friday morning then had to go to hospital in the afternoon for my pre op assessment. I wasn't expecting it so soon but pleased that I don't have to wait, I shall let you know how op goes once I'm out of hospital 😊 xx