Possible endo? Chronic Pelvic pain but no one will take me seriously!

[Lejay]

I'm still in the process of finding out what the hell is wrong with me! My pelvic pain started 2 years ago and the third doctor I saw told me a list of things it could be (endo,PCOS, institial cystitis,fibroids..) but she suggested it could be tight pelvic muscles. I told her that I had a ovarian cyst burst about 4 years prior and could it be scar tissue or adhesion but she said it's been too long since then. I was experiencing chronic pelvic pain from dull ache to stabbing pains and cramps/spasms which doubled in severity when I had my period,lower back pain, bladder urgency, pain with full bladder and after eating and drinking, nausea and light-headedness. I was meant to go to physio but I didn't have time and the prescribed muscle relaxants were working pretty well enough for me to function again if I avoided triggers like heavy lifting/carrying, certain sexual positions and reduced intercourse and orgasm frequency which is hard in a relationship. Unfortunately when my period came around I was in agony still but because I was on the pill I could skip a period and have it every few months which also gave me relief from my migraines for awhile at least. Then I switched to the implanon because my migraines were getting more frequent on the pill. Big mistake! I had so many bad side effects for 6wks that I had to get the stupid implant out. I was sooo sick. I thought I would be over the side effects now as it should be out of my system but I'm getting worse! I don't know how or why but when I had the implanon in I had severe nausea and waves of dizziness, stomach issues, more headaches and migraines, and a sore abdomen and pelvis that became a lot more painful even with the implant removed. These symptoms with the returned pelvic pain synptoms plus bouts of diahorrea have been continuing for about 3 wks since i got the implanon out and my pelvic pain is getting a lot more painful reaching deep through my hips and lower back and it is even painful to walk now. I went to doctor today to get a referral for a gyno because I decided I needed a more thorough investigation and I was so nauseas from the pain I started to cry in the waiting room. And then the doctor kept trying to find out if it's not something to do with side effects to any medication im taking (nope!) Then she made me sit there and talked to me like I'm stupid saying well we've tested you for chylamida and sti's and uti's and blood tests for iron and thyroid and so it's not those. Derr. I was waiting for her to utter the words that my other doctor (who is unconviently away for 2 months) mentioned, endo? PCOS? etc but then she wanted to examine me for a pelvic infection. Nope nothing there. She seemed to avoid the other possibilities that are linked to the symptoms I am experiencing. I had to suggest them myself and again ask her for a referral for gynos. She said she will but first I better get an ultrasound since it's been 2 years since the last one (that didn't show anything). I told her I prefer to go to a gyno and get them to get a proper look inside me with keyhole surgery (is that what's it called) but she avoided that and wanted me to come back to her after the ultrasound to get the referral. I'm so exhausted and in pain and fighting down the nausea that I didn't have the energy to fight her on her decision. She prescribed me more pain killer(that doesn't work!) and the pill (to hopefully help ease my period pain a bit) and I left with tears in my eyes. My plan is to ring around to find the earliest gyno appointment I can get and get another doctor to give me a referral. And if the gyno wants me to get another ultrasound I will but I am not going through the traumatic experience again of holding water in my bladder when I don't need to because the pain and pressure and urgency is horrible!

I'm hoping the gyno I find is good and will actually listen to me because I am sick of incompetent and/or condescending medical practitioners!

[lia4477]

You just described exactly what i am experiencing for the past 2 months. They did find what resembles a dermoid cyst on my ovary but no one seems concerned. I am trying to schedule appointment with gyno oncologist as to all my symptoms also point to ovarian cancer. I hope they take me seriously and figure out what the heck is causing me to fill so unwell.

[Lejay in reply to lia4477]

Did they say what they are going to do with the cyst? Did they find it on an ultrasound or during a pelvic examination?

Did your doctor say it could be ovarian cancer?? Oh hun don't start thinking the C word yet! Everything is cancer according to Google haha. A lot of the symptoms could be a number of things which is why it's so darn hard to get a diagnosis for pelvic pain. Ovarian cysts do cause a lot of issues although I don't know what a dermoid ovarian cyst is.

I've seen a hand full of GPs to find one who will take me seriously. Unfortunately the best one i found is away for 2 months so I had to find another one or two! I really hope I don't get the runaround with the specialist gynos like I do with GPs. I was so relieved to book an appointment for a gyno in 2 weeks which is unexpectedly soon... which makes me think is he any good if he doesn't have a long waiting period...

Anyways I feel your pain, literally and with people who won't take me seriously as well!

[lia4477 in reply to Lejay]

Doctors do not seem concerned about the cyst although i was told that it won't go away on its own and if i want it cam be surgically removed. No one mentioned cancer but google, lol.

However none of this improves how i feel. I am just exhausted physically and mentally.