Serious Endo pain in the night

[Wisteria93]

Hi, wondering if anyone has advice for when their endo pain wakes them up at night? I have numerous 10cm cysts on both ovaries and also endo damage near my bladder and bowel and I'm awaiting my surgery (hopefully in a few months) I find that I can sometimes handle the pain more when it's in the day (specially cause I need to go to work) but the nights are draining me. I am waking up at stupid o'clock most nights because of the pain and I don't really know what to do. It seems the usual pain relief doesn't always help.

Any advice is welcome - what do you ladies do to distract yourselves?

[Nikki84]

Try a hot water bottle at night x

[Wisteria93 in reply to Nikki84]

Thank you. Right now I feel like I need a never ending supply of water bottles x

[Tillyfloss]

hi. How you feeling? I was in a similar situation with large cysts attached to my bowel and womb and the pain was constast. Do you have a medication plan? I was seen by the local pain team to control the pain for the 3/4 months I was due to wait ( luckily my operation was bought forward).

was the pain very different from the discomfort in the day? I had sudden knock me sideways pain and a small cyst had ruptured and a large one was was bleeding into it's self, it took a week in hospital for the pain to get under control.

as well as the medication i found hot water bottles help and hot baths.

take care 😊 xx

[Wisteria93 in reply to Tillyfloss]

Hello I'm feeling a little better thank you. I'm trying to control my situation as much as possible before I go to bed (what I eat, hot water bottle etc). I see a pre op nurse in a few days so I'm hoping that there will be some medication offered. The only thing the doctors have suggested is the contraception pill 😣

The pain is different and I have a feeling lying down flat makes it worse? I'm not sure if this is normal or just me being paranoid...

I get a lot of pain a work (I'm a jeweller so I have to bend a lot into cabinets) but luckily nothing as bad as the pain I had when I went to A&E ( one large cyst twisted round something and cut off blood supply).

Have you had your operation? How are you feeling now? Xx

[Hidden]

Endo sisters call it painsomnia! welcome to the club 😔😫🎗

[Wisteria93 in reply to Hidden]

I'm just so glad I found these forums! It's nice to know others know what I'm taking about! Xx

[Tillyfloss]

hi how are you doing? Did you find the nurse helpful? You mentioned feeling it more when you lie down, I had the same thing I couldn't lie on either side as it became unbelievable painful within minutes and when I lay on my back you could feel the cyst it had gotten so big, it was at that point they bought my surgery forward as I had already been very poorly with a ruptured cyst in September.

I hope you have had some help with the pain.

xx

[Hidden]

Yep. I thought i was the only one.It's painful during the day and goes haywire at night. I don't know whether that's because i am more distracted throughout the day or does this condition just KNOW that i am about to get some rest and so ups the torture! OK that's just me being paranoid but its how it feels. I've no idea why it gets worse towards the evening.

I find that drinking Turmeric tea or ginger tea followed by 2 teaspoons of organic extra virgin olive oil helps take the edge off so I can sleep. Hot water bottle too. Also a bowl of organic oat porridge before I sleep seems to calm my bloating down and offer some relief from that.

I too am up most nights during my period at stupid o'clock too with my hot water bottle and just wondering when this thing will just go away. I too can't seem to lie down, lying down just makes it worse. I have a lump on the right side and an attached uterus to my abdominal wall towards the left and so that makes it painful no matter which way. I'm having better luck just propping up pillows and sleeping on my back which is exactly how i used to sleep after all my c-section surgeries and now it feels like i am having a C-section surgery every month!

My son has nicknamed me 'endo raptor' ( after the indoraptor from Jurassic World) Because of how grumpy I get sometimes You get the picture.

Endometriosis..The condition that just keeps on giving!

Hope you feel better dear

M x