I’m so low at the moment, last week I cried almost everyday just over silly things like my heat pad coming undone or not getting anything done round the house. I’m so scared my partner is going to get sick and tired of having to look after me all the time. We have come to a car boot today and I have had to come back and sit in car because my pain is just too much I have already had 3 lots of morphine so there is not much else I can take in the way of pain relief. I hate endo so much it’s taking my life away from me. Sorry just needed to rant. Thanks for reading x
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Xroisinellenx
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Sorry to hear you’re struggling. This condition is so awful. It takes so much away from you
It may not be the same for you but I’ve tried to roughly work out when in the month I have more energy and then at those times I make the most plans. And vice versa, when I know I’ll be bad I’ve made sure I’m not busy- like that car boot would be hell at the hard time of the month! It’s been a small change and yet it’s really helped with my mental wellbeing as I’m no longer setting myself up to fail. Appreciate it might not work for everyone as it’s not always predictable but worth a try xx
Thank you that’s a really good idea, it just seems to be going down hill a lot at the moment I don’t even remember my last good day, but I will try and see if there is a pattern in the next few weeks.
It’s hard because I’m the only one who can drive in the family and my partner really wanted to go and I was like yeah ok we will go but by the time we left the pain was really bad I was crying on the way but we had told r little girl we was going so I could not let everyone else down. Always in school holidays my pain is bad last holidays I was in a&e for a good 5hours because of it. Xx
I’m very sorry to hear this. I’m very similar. My situation at work with my manager being absolutely awful has left me on the verge of practically a mental breakdown. I went out yesterday morning and came home, have been in bed since with such horrible agony. Had 3 panic attacks already today about the prospect of having to go to work tomorrow. I just don’t know what to do myself anymore (waiting for a diagnostic laparoscopy and not knowing if it is endo or not is honestly awful)
Have you got in touch with occupational health? They might be able to help, they can kinda be the middle man in helping work understand what’s going.
Last year I was in the same place as you waiting for my op worrying will it be endo, like you really hope it is endo so you have an answer to your pain but then you don’t want it to be endo because who the hell would want it 😂
I hope work is at least bearable for you. Good luck x
I had an appointment with them in December when I could say nothing more than I’ll be seeing gynae. I’ve asked to be referred again but my line manager keeps putting it off for some stupid reason xx
Thank you all so much for your kind words, I come home and slept and felt a bit better after that. It just seems at the moment I’m never getting a break everyday is a bad day, but my op is not too far away so fingers crossed this pain is coming to an end it’s just really hard to see it when your having a bad day 😊 thanks everyone xxx
Sending you lots of love. Please stay strong and remember you are not alone. Writing and sharing on here was a great idea as I'm sure you can see you dont have to feel alone. I'm sorry you are in so much pain. I hope you are feeling better now xx
Hi, hope your ok, your not alone, the pain takes over everything. I have acupuncture and it was really good, it took my pain away to a manageable level with no pain relief for 6 months, I had 5 sessions but noticed a difference after 1. I also bought Chinese soup, they have a special type for endo, it tasted disgusting but I added honey to help with the taste x
We can't help with your pain but as fellow sufferers, we can send our support and understanding, stay as strong as you can. Big, big hugs.
You poor love, with that kind of pain relief it sounds like you're really suffering and I totally sympathise.
I feel the same about my husband, when things are bad for me I see it taking it's toll on him and then we end up getting at each other so much because we're both suffering, it's very hard. We also have a 21 month old and I am definitely not the preferred parent as I'm so boring and can do so little.
I'm sure you've done this but maybe just try and give yourself realistic goals, like with going out, if you're the only one who can drive then drive them but stay in the back of the car with comfy cushions and watch something on your phone. And just be sure that your partner knows your limitations at the moment, if all you can manage most days is coming downstairs to make a cup of tea then that's better than nothing. When my pain is at its worst just having a shower is a step forward for me, sounds pathetic but you know how little energy and will power you have when that pain hits.
Counting down the days til your op, it will come sooner than you expect, and when you're recovering just be kind to yourself, you may feel worse for a few weeks but give yourself atleast 4 to 6 weeks before you start assessing your pain.
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