Cancelled appointment

[Vickysponge357]

I was soooo close to my first gynea appointment to get everything moving along! It was booked for the 21st March but I received a phone call this week cancelling my appointment.

They called and said that they have had a huge influx of suspected cancer referrals and not enough time to see all of these ladies so they have had to cancel the clinic that I am booked into so that these ladies can be seen. She said I will get a new appointment possibly end of April/may. I hung up the phone and just burst into tears

I completely understand the need to cancel my appointment, suspected cancer 100% comes first and those ladies need that appointment more than I do. But I just can’t help but feel upset that I was so close to seeing a specialist and now I have another month or 2 of just waiting in pain 😞😞😞

In the mean time I do have my first appointment with colorectal now booked on Wednesday for some investigation but I don’t think that is going to come of anything because I am so sure my problems are from endo!

Though it’s obviously not a cure... I have treated myself to a little furry friend this week and he has done an amazing job of lifting my spirits and making my laugh and smile and feel like a human again!

[Love_koffy]

I feel you, i been back and forth to my go for years before a referral for gyna was made, its sad they just fob u off time and time again, i was also seen by colrectal and said i didn't have bowel issues but if i have been diagnosed with endo it would be endo that's affecting my bowels, my MRI showed my bowels are stuck to the back of my uterus, so that explains the pain, have u been taking laxatives to help you? And have u tried the fodmap diet? I hope you get an appointment soon, if u don't hear back on 4 weeks do chase it up, sometimes they forget about you

[Vickysponge357 in reply to Love_koffy]

Yeah, I definitely have bowel issues but I would put money on it being endo on the bowel. But at least I am moving along with that side of investigation I suppose. I have been taking fibogel twice a day for 2 weeks now, but I can’t say I have noticed things improve much.

I can’t say I have heard to the fodmap diet. I will do some research!

[Love_koffy in reply to Vickysponge357]

I wouldn't take fibogel it did nothing for me, my colorectal specialist said fibogel is for when u r lacking in fibre but you need twice as much water, i found movicol/ laxido work so much better for me. And every time i now go to open my bowels i have a glass of water after, fodmap tells u what foods are likely to aggravate ur flare ups, so have a look through The list it might just surprise you what youre having that may contribute to pain

[Vickysponge357 in reply to Love_koffy]

I will take that on board and make sure I discuss that in my appointment. My GP said she chose that one because I was going back and forth between constipation and diarrhoea and she wanted me to have something that was going to make everything a bit more consistent, but going to the loo to open my bowels still makes my eyes water. I’ve found that I put off going because it hurts so much that I don’t want to go through with it, which then actually makes it worse

[EndoJaz]

I know the frustrations of being cancelled..my hyst was cancelled after me being in the hosp gown with stockings on ready to go. Had to wait a whole month for the op. As for bowel probs, I think its def psycological if you know its gonna hurt then it doesnt happen. Prune juice is great and chia seeds, flax seeds.

[franathy]

I've had the same thing happen my surgery was booked for 27th march and has now been moved to end of April. I cried too. After a couple of days I felt a bit better about it as realised it's not that long really. Can you try and find something nice to do between now and then? I've booked a Well Woman massage for women with endo. It's so hard though I know. I'm having a flare up at the moment and am just so, so sick if it. Sending hugs xx

[HannahElsie]

I’m in the same position at the moment. My original referral took 24 weeks rather than the 12 maximum because I found out my GP forgot to submit the referral. My appointment was due to be March 25th and it’s been cancelled. Finally had another appointment through and it’s not until July. It’s frustrating to say the least. It makes me just want to say f*ck it and cancel it myself for all the help they’ve ever been but that won’t help me in the long run. It’s tough, I feel you.

[Ally86]

Hi Vickysponge357,

So sorry they have had to cancel your appointment. Have you tried Passion Flower for hormones? I find it really helps with my endo xx